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Articles tagged with: My Fabulous Disease

Apr13

Remembering, and Saying Her Name

Friday, 13 April 2012 Written by // Mark S. King - My Fabulous Disease Categories // Social Media, Gay Men, Living with HIV, Media, Population Specific , Mark S. King

Mark S. King on his blogging career with TheBody.com, the woman who helped him start and a look back at his very first video effort.

Remembering, and Saying Her Name

In the Summer of 2008, I received a curious package from Bonnie Goldman, the editor of TheBody.com. Inside was a Flip video camera, what was then a new-fangled device that allowed you to take video footage with a camera the size of a pack of cigarettes.

It came with a simple note. “I think you should try this,” it said.

How did she know? I wondered. I had never mentioned to her that I once taped a special for my newborn niece, back when video cameras were the size of footballs and editing consisted of painstakingly recording segments from one VCR to another. “Carly’s Video” consisted of magic tricks, songs and a dramatic reading of “Yurtle the Turtle.”

And yet, Bonnie had the notion that I might have some fun documenting my life as a gay man living with HIV. Immediately, I bought editing software online and started to learn it. But I had my doubts.

There wasn’t anything particularly special about my life, I complained to her in a phone call to her New York office. And a lot of it, like my ongoing struggle with drug addiction, was downright seedy.

 “Tell the truth,” she said. “The more honest you are, the better it will be.”

I trusted her judgment. In my writing for TheBody over the previous years, Bonnie had always demanded the best of me. We regularly debated topics and my approach to my written pieces, and anything that sounded too easy, that contained more platitudes than honest emotion, was questioned. The same would hold true for the video episodes that I quickly began producing.

In September of 2008, “My Fabulous Disease” premiered on TheBody.com. The first episode was an introduction to my life, and already I was being playful with the camera and the potential of video. It concluded with the mantra that Bonnie had instilled in me. “I can’t promise this will always be entertaining,” I said. “But I can promise I will always be honest. So. Let’s see what happens…”

Since then, plenty has happened. When I spent time in Michigan caring for a brother dying of cancer, the camera was there. When I was treated for facial lipoatrophy by getting injections of facial filler, I brought the camera. For everything from my thoughts on barebacking to touring a gay sex club to drug relapses to HIV criminalization to the international AIDS conference in Vienna, I documented everything using the inventive gift sent to me by Bonnie Goldman.

When Bonnie left TheBody a few years ago, I missed her counsel and her friendship. She was maddeningly hard to reach in the two years after, and I wondered if our friendship had been purely professional.

And then the news, in January of 2011, that Bonnie had died after a long struggle with cancer. She had fought it privately, and I felt ashamed for having wanted more contact during what was clearly a difficult time.

Only now, more than a year after her passing, am I finally writing about her death, something so deeply felt I haven’t found the words. I am searching for them still. Life keeps showing up. New people populate it, projects come and go, video episodes of My Fabulous Disease are made. And it has been too long since I have said her name out loud. Bonnie. Bonnie Goldman.

We all come across things, tokens from a person, from a life we treasured but has faded from view. A photograph on a shelf that we pass in the hallway. A shirt in the closet. A book. A recipe.

A broken video camera that has outlived its purpose, that I cannot bear to throw away.

This article first appeared on Mark's blog, My Fabulous Disease.

Apr06

The Unfortunate Pursuits of the Idle Blogger

Friday, 06 April 2012 Written by // Mark S. King - My Fabulous Disease Categories // Arts and Entertainment, Gay Men, Lifestyle, Living with HIV, Population Specific , Sex and Sexuality , Mark S. King

Writer Mark S. King is asked to critique some “gay erotic fiction” aka porn sent to him. “Using standard literary analysis felt like watching a skin flick and wondering if the wooden floors they’re flailing around on are bamboo.”

The Unfortunate Pursuits of the Idle Blogger

Being a writer is not without its perks. I can’t exactly name one at the moment, but I’m certain they exist. Hold it, here’s one. Starting sentences with “Being a writer…” Oh, and receiving gay erotic fiction from a guy who wants feedback on his work.

This morning as I chomped down my Raisin Bran Crunch, I opened email from an aspiring writer and read his gay sex story called “Jason’s Awakening.” The title has kind of a grand sweep, don’t you think? Very English Patient. Or The Sheltering Sky.

Anyway, Jason is 25 and textbook hot, if textbooks gauged such things, and happily engages in his first homo experience in the gym sauna with another muscled hottie. Everything goes along swimmingly, so they do it again in the gym shower. And then again twenty minutes later back at the house. I kept hoping they would grab some bottled water to stay hydrated. Our characters are both frighteningly endowed and no one complains about rectal spasms or asks the guy to please slow down for one damn minute, for God’s sake. But I’m projecting.

I had hoped to be transported, as good writing often does. But my critical eye kept getting in the way.

What kind of gym was this, anyway? Certainly not LA Fitness. That sauna has more of a Jewish deli flavor, with older men wearing ill-considered briefs and complaining about the poor selection at the juice bar.

This Jason fellow was mighty accommodating during his “awakening” in the dry sauna, I must say. Why was it that now, at his age, he was just waking up? From the descriptions of his maiden sexual voyage he looked wide awake to me. Maybe it simply took the right sauna. The wooden planks at LA Fitness are murder.

Reviewing porn over breakfast was crushing to my perceived position in the literary universe, I will admit. I would have preferred, say, examining a potential submission to OUT Traveler on the rustic beaches of Croatia. Hell, they could be nude beaches, I wouldn’t mind. Instead I get enthusiastic Jason, with orgasms launched with such range they confound physics as we know it.

Worse yet was writing my response. Aside from the existential crisis I endured over morning coffee, wondering how it had come to this and ruefully damning my life choices, there was the matter of deciding what to say in my role as the experienced wordsmith. First, deconstructing porn takes all the fun out of it. And once engaged in the task, using standard literary analysis felt like watching a skin flick and wondering if the wooden floors they’re flailing around on are bamboo.

I tried to be helpful in my email to the fledgling writer, pointing out the lack of backstory for Jason and actually using phrases, so help me, like “character flaw” and “conflict.” He also had the irksome habit of using language that “removes the reader from the scene at hand,” as I dutifully explained. You know, like mentioning the many flavorful selections provided by the Keurig gourmet coffeemaker on the kitchen counter, which I suppose you might spy if you looked just over the shoulder of the man getting boinked against the sink.

There are also words that are a smidgen overused in writing for this particular milieu. (Yes. I said milieu. Allow me to exercise my vocabulary after the soul crushing morning I’ve had.) Words like “engorged,” for example. There are others, and they are probably crossing your mind about now. Sorry about that.

Some words seem to exist almost solely in the context of porn. Case in point: I defy you to find the word “perineum” outside The Physician’s Desk Reference. And yet there it was, nestled in the text of Jason’s adventures, a ten dollar word stranded amidst sticky loose change.

Twice.

Go ahead, Google the word. I got all day. It’s not like I have stacks of porn to wade through. Nope. I only had the one.

With my literary critique complete, I charged on through lunch with other vital business, like finding pictures online of my friends to attach to their names on my phone. I love to see their happy faces appear when they call, all of them smiling reassuringly, as if to say they believe in me, they applaud my brave and transformative work, that I couldn’t possibly be sipping coffee and bemoaning the lack of synonyms for “scrotum.

I will trust those happy faces. They needn’t know of my morning reading. I will simply consider it an exercise in “expanding my skill set” and “pushing the envelope.” Yes. I like the sound of that.

And now I have some further work to do on my phone’s contact list. I need to assign a photo to the author of today’s reading, and it may take some time to find an image of a perineum.

This article first appeared on My Fabulous Disease, Mark S. King’s regular – and fabulous - blog. 

Mar25

Dealing with Shame can be a Drag

Sunday, 25 March 2012 Written by // Mark S. King - My Fabulous Disease Categories // Arts and Entertainment, Gay Men, Performances, Living with HIV, Population Specific , Mark S. King

Mark S. King says “Being a drag queen, even for a night, terrified and delighted me. But the performer in me won out, wouldn’t you know, and Anita Mann was born.” The rest is history!

Dealing with Shame can be a Drag

We’re born naked… and the rest is drag.” — RuPaul

When I was nine years old, I took my parents’ album of the Broadway musical “Damn Yankees” and memorized every syllable of Gwen Verdon’s show stopper, “Who’s Got the Pain When They Do the Mambo?” Once I was satisfied with my lip-synching and choreography (I decided that a mambo was a dance in which young boys gyrated and flung themselves on and off the living room sofa), the number was ready for public display.

The premiere was a simple affair, exclusive and unannounced. Mrs. May from across the street had stopped in for afternoon coffee, and opportunity knocked when Mother busied herself in the kitchen for a few minutes.

 Not a smart move, Mother, leaving Mark alone with the company.

“Mrs. May, would you like to see me do a song?” The unsuspecting woman gave a polite “yes, that sounds nice” and before Mother could run interference I had turned on the stereo and dropped the needle at the precise moment where Gwen breaks into song.

Mrs. May stared and stared, her hands folded neatly in her lap, as I brought out every sashay, twist and thrust in my dancing arsenal. My moves may have been imperfect but I vocalized brilliantly, thanks to Gwen. As I struck my final pose, arms reaching for the heavens, frozen and triumphant, I saw mother standing in the doorway, holding a plate of cookies and breathing heavily through her nostrils.

Future performances would be limited to my bedroom, where I could conjure an audience cheering with acclamation and mothers wouldn’t put you on restriction.

It is that boy, the cheerful but feminine performer, that I always feared would creep out of me as I navigated young adulthood as a gay man. I worked to shed his characteristics, to replace every soft gesture with a wooden one, to embrace the gym and tank tops and Levi jeans with the same fervor I once had for my beloved Broadway musicals, with mixed success.

And then, a lifetime later, as I worked for an AIDS agency in Atlanta in the 90’s, destiny called. An upcoming drag contest to benefit our agency was suffering from poor participation, and my boss asked if I would consider entering.

Being a drag queen, even for a night, terrified and delighted me. But the performer in me won out, wouldn’t you know, and Anita Mann was born. I created an interactive video rendition of Donna Summer’s “This Time I Know It’s for Real,” (even then, long before this blog, I was toying with the possibilities of video) and won the contest.

 Soon I was performing with “the camp drag queens of the south,” The Armorettes, who hosted a Sunday night show to raise funds for AIDS organizations. Over the years they have raised over $1 million, and their show was a sellout every week. But my own phobic notions lingered.

I didn’t want to be known as a drag queen (“It’s comedy! I’m a performer!” I would insist). I never appeared anywhere in drag but on that stage – I would always get dressed at the show, and was often out of drag for the final curtain call, in a bid to display whatever masculine credentials I had to offer.

I would hear other gay men make disparaging remarks about drag and I withered, unable to admit I was playing to a packed room every Sunday.

The nexus of shame and shamelessness is a complicated one. Each week I put on full display the very things about myself that I had worked so hard to reject – my femininity, my silly pursuit of acceptance through laughter and applause. And just as I gained confidence in what I was doing and why, I would lose a potential boyfriend when he learned of my weekend talents.

As a growing drug addiction encroached on my free time, I abandoned Anita Mann to its demands. For many years thereafter, Anita’s dress and wig would be relegated to a duffel bag hidden in the back of the hallway closet. I had found a vocation in drugs that offered twice the shame and every bit of the need to keep quiet about it.

It took a few years in recovery from my addiction before Anita would make her comeback. Armed with a TV set and a sense of the absurd, Anita performed at a benefit for those of us in recovery, in what may have been her finest hour. Her rendition of “Don’t Get Around Much Anymore” grows more insane by the moment, and perfectly embodied my interest in multi-media performance.

And yes, I am aware that I speak of her in the third person. Maybe it is because I view her as a character I have created, and perhaps it is the remnants of shame, and of my need to keep her at a distance.

It’s strange, how those things about which we have drawn the most shame are also able to liberate us, not to mention help others. My HIV status. My drug addiction. My drag personality. As I have embraced each of these, I’ve found self-acceptance and a way to carry a message of hope, and even joy, to others.

Anita Mann limits her performances these days to recovery-related engagements. It seems fitting that these two aspects of my life, both once secretive, have found their place together. Anita has a voice now as well, doing a sort of recovery stand-up and even singing live when the occasion permits. Anyone in recovery might enjoy watching the highlights of her recent stint at the Crystal Meth Anonymous conference in Atlanta, which includes her bittersweet rendition of “Happiness is…”

Meanwhile, I still struggle with the need to project as much masculinity as I can muster. I swagger more than I sashay. I sport a beard when possible. And I work to maintain a strict gym regimen.

It’s important for me to stay in shape if I expect to fit in that dress.

This article first appeared in Mark S. King’s own blog My Fabulous Disease.

Feb24

Living with Hep C

Friday, 24 February 2012 Written by // Mark S. King - My Fabulous Disease Categories // Hep B and C, Gay Men, Health, Living with HIV, Population Specific , Mark S. King

Mark S King has been there. But he says “The good news, thank God, is that the treatment plan worked, and I cleared hepatitis C from my body. There has been no recurrence. “

Living with Hep C

The image in my mind has never left me, even after many years of trying, of applying layers of wallpaper to that corner of my mind. I am in someone’s bedroom — it could have been anyone, really — and I am offered a syringe to inject crystal meth. The syringe has been used. I take it. I consider the consequences for a brief moment, but I am cavalier. And very, very high. I use the syringe.

It wasn’t the threat of HIV that gave me pause. It was hepatitis C, which I knew was serious… and that’s about it. But I can tell you this, now, my friends: More U.S. residents are now dying of hepatitis C complications than HIV-related illnesses, as reported recently by Tim Horn in Hepatitis News.  

Within days of using that syringe, maybe two weeks, I become horrifically ill. The acute infection swept through me like a freight train, exhausting me, turning my urine brown, making it impossible to perform routine tasks. Doctors diagnosed it quickly, and then gave me the grave treatment plan: 11 months of interferon, coupled with ribavirin. The interferon, a ferocious chemotherapy, would cause mood swings, deep depression, and would be administered, ironically, by injecting myself with it each week.

Depression is so severe among interferon patients that they do not allow pilots to fly who are being treated with it, for fear they will deliberately crash the plane.

The months I endured with hepatitis C and the treatment protocol remains the worst period of health in my life. The mental side effects were as devastating as the illness. Everything hurt. Everything made me angry. Or want to cry. Or convinced me you were against me. Those eleven months crawled by without mercy.

The good news, thank God, is that the treatment plan worked, and I cleared hepatitis C from my body. There has been no recurrence.

I’ve said that the disease most likely to kill me is addiction, not HIV, and hepatitis C was a terrible by-product of my addiction.

While I am drug-free today and maintaining good health, the report that hepatitis C has overtaken HIV as a cause of death brought up some strong emotions. It reminded me of the insanity of the interferon treatment, and then, of course, the insanity of my drug addiction. And it made me wonder how many of those who are dying of hepatitis C acquired it the same way I did.

My life is filled with unlikely rescues. To have lived with HIV for thirty years and to be here typing on my laptop is amazing. To have thumbed my nose at that fact, and reward my good fortune by sticking needles in my arm, well, that is as alarming and sad to me as it must be to you. It’s tough to feel worthy of the grace that has saved me, again and again. So I’ll simply be grateful to be clean and alive today.

Get tested for hepatitis and get the vaccine for A and B if you have not already been exposed. And should you be an injection drug user, bring your own clean needles wherever you use. You and I both know that, when the choice is a used needle or getting high, all of our good fortune can disappear in a flash.

Mark

p.s. May I sneak back on my HIV criminalization soap box for a moment? If 26 U.S. States have laws criminalizing the potential exposure of HIV to another person, than why don’t they have laws against exposing someone to hepatitis C, which is now officially more deadly than HIV? Thank you. That will be all.

You can read more of Mark S. King on his own blog My Fabulous Disease here

Feb13

HIV Criminalization Face-Off: One Poz Man and His Accuser

Monday, 13 February 2012 Written by // Mark S. King - My Fabulous Disease Categories // Activism, Legal, Living with HIV, Mark S. King

Mark S. King” What if you could witness a face-to-face confrontation between a man living with HIV and the sex partner accusing him of not revealing his status? Wouldn’t you like to be a fly on that wall?

HIV Criminalization Face-Off: One Poz Man and His Accuser

The fireworks could be mighty, as emotions raged between the furious accuser and the positive person trying to defend his actions. What might that meeting look like, exactly?

In this video, you’re about to find out.

Amidst the highly charged emotions of the HIV criminalization debate, “sides” are developing. One side believes that those with HIV who do not tell their sex partners about their status should go to jail. Period. But others claim that there is little public health benefit to laws against non-disclosure because they discourage people from getting tested – you can’t be prosecuted if you don’t know your status — and there are often prosecutions in which the risk of transmission is remote or even non-existent.

But taking firmly entrenched sides helps no one. We’ve simply got to get educated beyond our gut reactions to these prosecutions. We all could use more understanding about HIV criminalization laws, how they are being applied, and whether or not they are truly serving the public good. It’s also important that we understand the anger of those who feel they were put at risk and are seeking retribution.

A full list of HIV criminalization laws – and convictions globally (including for each of the states of the USA ) can be found at http://www.gnpplus.net/criminalisation/. To find multiple resources on what to do if one is at risk of prosecution, who to call for help, what the law is in every state, or get palm cards with links to resources, visit The Positive Justice Project.

But back to the video: I couldn’t help but wonder what might happen if an HIV positive man had to sit down with his accuser and explain himself. So, through the magic of some creative editing, I produced this video episode of “My Fabulous Disease” to give a voice to the opinions and feelings of both parties. You can decide if I was successful.

I used this editing technique to comic effect in the “My T-cells Could Use a Facelift” episode (the infamous video about butt padding, among other things). I’ve been looking for a good reason to do it again, and I thought this topic fit the format perfectly.

Thanks for watching, and please be well.

Mark

You can read more of Mark S.  King on his own website My Fabulous Disease 

 

Nov10

Divorce, Stress, HIV – and No Jokes

Thursday, 10 November 2011 Written by // Mark S. King - My Fabulous Disease Categories // Dating, Gay Men, Lifestyle, Living with HIV, Mark S. King

Mark S King goes on the couch to try processing his recent break-up, talks with a friend then gives a nod to PositiveLIte.com

Divorce, Stress, HIV – and No Jokes

 

This is a rather personal blog video, there’s no doubt about that. I’m even a little apprehensive because it doesn’t offer the usual helpful tips or the “entertainment value” of my other videos. But one of my problems has always been trying to be the life of the party when I’m not feeling it. So please allow me to offer you a different Mark than you might be used to, unplugged and exposed.

The last few weeks have been tough, I won’t lie to you. My nine-year relationship came to an end, and I’ve found myself feeling some self pity and fear – that is, when I slow down long enough to catch up with my own emotions.

My schedule has been fast and furious, and now things are even busier as I make plans related to the breakup. In January, I will return to my beloved Atlanta, where a strong support network of friends awaits me with open arms.

Until then, I’m lucky to have friends like David Fawcett (seated at right, in our silly video opening), who also happens to be a therapist. Everyone should have a friend who’s a mental health counselor, if you ask me. David serves as one of the panel of experts at TheBody.com, as well as writing his own blog with helpful messages related to our emotional well being.

In this, the newest video episode of My Fabulous Disease, David and I sit down for a very candid talk about my fears and even some of my unhealthy thought patterns, some of which have been with me for a very long time.

Thanks for watching, my friends, and please be well.

Mark

PLUS…

Can someone be a self-described “sex addict” porn star and also a role model? Well, I won’t be nominating Mason Wyler for a GLAAD award this year, but I do appreciate the fact that he is candidly discussing his sex life as a man living with HIV. In an interview on PositiveLite.com by Bob Leahy, Wyler is casual about his newly acquired HIV status, and doesn’t believe there’s any connection between watching bareback porn and actually doing it (excluding, well, himself I suppose, since he admittedly likes “nasty bareback sex”). “Porn is a form of entertainment,” says Wyler. “It doesn’t and shouldn’t have any more influence on someone’s actions than say… music, movies, or video games. I think most guys participate in bareback sex in some capacity regardless of what porn they watch. We’re only human.”

Frank remarks like that one have won over some people. (PositiveLite.com) writer Michael Burtch, in a July 2011 opinion piece, said this about the porn actor. “Mason Wyler has quickly become one of my favorite, openly HIV+ porn stars. When he writes ‘I don’t need someone to talk to, I need someone to fuck me’ on his blog or summons up the complexities of HIV by succinctly stating ‘it sucks.’ I totally get where he’s coming from and toast his post-AIDS sensibility.”

This blog first appeared in Mark S, King’s fabulous blog My Fabulous Disease.