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Articles tagged with: HIV prevention

Aug30

Hands-on experience

Tuesday, 30 August 2011 Written by // Wayne Bristow - Positive Life Categories // Wayne Bristow

A post about masturbation whipped off by Wayne Bristow, our jack off all trades. It didn’t come easily for him, but don’t worry. It has a happy ending

Hands-on experience

I did it!

If you’re reading this, it means you know I’ve got the “you know what” to actually do it. This will probably go down as my most controversial blog post ever, hands down, ummm, I'd say “no pun intended” but that might ruin it.

First, here’s a little something from a Tom Waits CD called “Nighthawks At The Diner” to set the mood. The CD is a live recording, so he gives a little intro before each song and this is for “Better Off Without A Wife”.

 “I’ve always kind of been partial to callin’ myself up on the phone and askin’ myself out.

(The audience laughs) Ah yeah, you call yourself up too, Huh!

One thing about it, you’re always around”

Further into it . . .

“Take myself up to the porch, take myself inside, Oh, I may get a little something in a brandy snifter”, listen to some of my back records.”

“Well usually by 2:30 in the morning you’ve ended up taking advantage of yourself, there ain’t no way around that. Yeah, makin’ the scene with a magazine, ain’t no way around it”

“I’ll confess, you know, I’m no different. I’m not weird about it or anything, I don’t tie myself up first. Its just, I spend a little time with myself”

I can just picture certain people reading this, people that I know personally, who will be thinking, “OMG, he’s talking about……….the M word. He’d better not mention my name or I’m never telling him anything ever again”.

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I used to tell my friends, just for the fun of it, “I could never masturbate because I’m not attracted to myself”. They would get so mad at me, they would tell me to stop putting myself down, I’d just tell them it wasn’t meant in that way, Jeeeeze you’ve got to be able to laugh at yourself once in a while.

Abstinence will always be the number one way to prevent the spread of HIV, but it just isn’t much fun. Having a happy, healthy sex life makes us all healthier and happier. Not all sex acts are risky, there are plenty of things you can do that are very safe and this is just one of them. You can do it alone or you can have someone give you a…..hand! It’s like foreplay but you don’t go to the next step. (editor’s note: five play?). For me intimacy and lots of foreplay is essential.

There can still be exposure to some body fluids, sure, but outside the body the virus will die off in a short period of time. If I remember my HIV101 correctly, the virus will die off long before it has a chance to be absorbed through the (healthy) skin.

Looking back, I can see now that the M word was my first encounter with a stigma; you didn’t talk about it and there was something wrong with doing it, they told you, “If you don’t stop doing that, you’ll go blind”. People made fun of you with little comments, “have you got your masturbation papers yet?” Now the big word they use comes from the Brits I believe “Wanker!”.

I believe that if I can find people to sit down and talk about it, then it isn’t as much of a taboo and is more accepted and most of all, it’s safe.

So if you can relate to this in any way, you’re not alone……….well you are alone, some of the time, but you don’t have to be all the time……..oh, you know what I mean.

I did it! Give me a hand. Give yourself a hand, Yaaaaay! It just made me think of a line in another song, “Will I do, until the real thing comes along.” I think too much I think.

You all take care of yourself, ya hear!

xwaynejo5

 

Aug25

Deep inside The world of Leather (Part Two)

Thursday, 25 August 2011 Written by // Bob Leahy - Editor Categories // Contributors, Features and Interviews, Bob Leahy

Bob Leahy continues his interview with boy iain, Eastern Canada Leatherboy 2011 and talks about leather families, kink, leather sex and HIV

Deep inside The world of Leather (Part Two)

WARNING If sexually explicit talk about sex, raunch and BDSM activities might offend you, then this part of the interview is not for you. Please exit now.  Thank you.

Read Part One of this interview here .

Bob Leahy: I guess this is the point where we need to know more about Master Chuck, your Sir. Now I happen to have met him. He and I have both been involved in the AIDS movement, he as a negative man who was instrumental in getting the HIV movement going in Northern Ontario, I think. He was on the Board of the OAN (Ontario AIDS Network) for many years too. But anyway, you belong to Master Chuck, don’t you?

boy iain:  My collar states that I am under the firm guidance of Master Chuck, so in that aspect I belong to him.  It has been quite the ride, pardon the pun, and he has been quite an inspiration for my own involvement in HIV activism, volunteering with the ACT Gay Mens Outreach Program.

Now that’s a hard concept for some of us to get our minds around. Tell me what being owned by a Master involves?

I am actually no longer owned by Master Chuck, and with the change in dynamic from slave to boy I am not considered His property in the way a slave would be, but I can certainly talk about it from experience. Being owned means that, while I am responsible for my own well being and health, He also takes great care to ensure that from a Dom/sub perspective that I am valuable property. So in short, making sure I grow, that my value as a submissive, and as a human being is increased, not decreased or broken down as some would expect.

And of course, from a play perspective, that the sub knows how to play safely, what to look for in a top or dominant that we might play with, or even as a top or dom themselves, how to play safer.

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You’ve called it “a relationship of voluntary servitude that you can walk away from at any time”. But you have a written contract, right?

I certainly do – all of Sir’s submissives have some form of contract or another. The contract outlines the expectations of the relationship and the behaviours on both sides of the relationship. It also states that either of us could walk away at anytime. It is completely voluntary.

Now I know Master Chuck is patriarch of a large poly(amorous) gay leather family. This type of extended leather family is relatively rare, right? Are there any others like this in Canada?

Not necessarily the size of Sir’s, but Leather families do exist in Canada and here in Toronto, I can think of four that are multi-generational in a similar vein.

The Dom/sub thing seems fairly complicated in the context of a family like this. For instance, the Master Chuck family includes doms, and you yourself have four subs of your own. So it sounds like switching roles isn’t just uncommon it’s almost required, no?

It’s all about creating balance. Some of us switch, some are primarily dominant and need some level of guidance (play or other), it’s other’s nature to be more submissive. So someone like myself, who had four subs over time, finding the balance between being submissive and dominant, or top and bottom, that helps someone to be satisfied is key.

So no, you don’t have to switch, because everyone has their own dynamic. That said, it’s often not surprising that a sub may become a dom over time. Although there have been cases where a dom becomes a sub.

In a family like this of many subs, isn’t there the potential for rivalry and jealousy? How is that handled?

Absolutely – and this is probably the question I get asked the second-most. The key is being self-aware and addressing the issue directly as it comes up. The one thing a sub wants more of is more time with their dominant.

I get confused by some of the names you use. What’s the difference between a slave and a boy – looking at your bio it looks as if you’ve been both, iain.

This question is so subjective between Dom and sub. What may look like Sir/boy between one couple may be Master/slave to the couple. The key difference, as I see it, is that a boy has more freedoms than a slave. There are those things I can get away with as a boy that I cannot get away with as a slave.

Now you also have a partner outside the family which you’ve been with for 14 years. I don’t know why but that REALLY surprised me when I learned about it. How does he feel about the relationship you have with your Master? And Master Chuck has a partner too, right?

My partner Scott was actually collared to Master Chuck at one point as his boy, and the dynamic continues today in a Daddy/boy dynamic, but Scott is also a covered Master in his own right with a boy and a slave of his own. And you’re right - Master Chuck has a primary partner of, around 25 years, Rocco who is into 1920-style Gangster scenes. Just to confuse things even more. ;)

This is the part I have a hard time wrapping my mind around. I mean open relationship are fairly common within the gay community, but this takes that to another level, another level of trust. And it is all about trust, isn’t it?

It is very much about trust but also communication. In the relationship Scott and I have, we both have a say in who we are involved with as a dom or sub. So as Master Scott took on slave-pup Kalen and boy craig; I had a say in whether or not he could take them on. Rocco has the same say with Master Chuck. Sir’s requirements for me to become His boy and also His slave had to be accepted by Scott, and Scott had to be included.

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Master Chuck has said   “I firmly believe that submission is a precious gift that doms should accept with humility; then use BDSM as a tool to reach the sub’s inner core and become one with our boys and slaves”. It sounds like there is almost a spiritual aspect to all this.

Very much so – it’s not all just about creating pain for the sake of pain. It’s so much deeper. As I alluded earlier, in a heavy play scene, crap can come up that causes us to get deeper into each other’s core and soul.

I guess an outsider might ask WHY do you this. WHY is this life such a good fit for you, when for instance in business you are very much in control. Do you know where that need to be submissive, to be of service to a master comes from. Or does it even matter? It just IS, perhaps?

I think it’s something that just IS. Admittedly, I know I could walk away and try and become the biggest baddest top in the city, but that’s not me. I am probably much more top oriented, I don’t care much for huge amounts of pain, but I like to submit. Just as Sir is 98% top, and 2% bottom – and being dominant is quite central to His core.

This whole area is fascinating. I think I could ask question for days, but I also want to ask you about the intersection between the leather community and HIV. Now both you and Master Chuck, both negative, are very much in to educating others in the leather community.   I know that some of the workshops you’ve been involved with include dealing with risky sex issues, right?

For sure. In fact, from the very beginning of our interactions, we talked about so-called taboo topics of sexuality. We’ve talked about barebacking and the fact that while yes, I would love to experience it, the reality with HIV, Hep C and other STIs is that it’s not a risk that we are willing to take. We have also talked about the fact that in my past, I have barebacked.

We also have talked about using so-called taboo language such as me begging, “Sir, please seed me” as He’s fucking me. Sir has shown me, and others, how to eroticize safer sex, so when I am putting on a condom on His cock, or I see Him doing it, my ass is twitching.  

We’re not afraid to talk about these topics, and use this kind of vocabulary in our play. I think it empowers us to make risk-mitigated choices in our play, and it makes it hotter.

Do you think there’s any special excitement associated with risky sex? In other words it’s hot BECAUSE it’s risky? And if so how do you deal with that?

I will admit that when I first looked at the Leather scene many years ago, I did make an assumption that if I got involved that it would mean that I would eventually become HIV positive. Today I realize the errors of that thinking and I know that stance could be considered pretty offensive. I feel embarrassed admitting that. People need to know that this is not the case.

There IS a special excitement associated with risky sex and what we do in Leather. It adds to how hot it is. By attending courses, learning from others who know what they’re doing you can learn heaps of to-dos, recommended don’t dos – and ultimately learn from a risk-mitigation standpoint.

There are a number of acronyms used in Leather. For instance, SSC – Safe Sane and Consensual, RACK – Risk Aware Consensual Kink and PRICK – Personal Risk Informed Consensual Kink

The main point of these is that it’s not just up to the top or Dom to manage the risks within a scene, but it’s also up to the bottom or sub to also know what they are getting into. From both sides, be aware of any risks in a scene. It’s a two-way street.

I’m not just talking about STIs here as well. For example, Master Chuck and I presented a seminar on electro play. If you have any form of a pacemaker in your body, electroplay/estim is not for you as a bottom.

Right. Lately we have heard a lot about pig sex or pig play in terms of HIV prevention. Define pig sex.

Pig sex is different things to different people. ACT (AIDS Committee of Toronto) has been great at promoting discussion on so-called taboo topics and this is one of those topics. Pig sex, for me, is all about getting down and dirty and letting inhibitions go.

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So for example, I had great fantasies about blowing someone in their office, and then more guys coming in to use my mouth and to blow their loads in a bukkake scene – all over my face, body, etc… Making that happen. Another scene might involve wanting to be blindfolded in the back of a pick up truck and having all of my holes used, almost spit roasted non-stop.

To me, it involves a lot of vocalization and body fluids – piss, cum, sweat and spit.

So is pig play potentially more risky than “vanilla” sex, do you think?

It all depends on the choices that are made, and what has been negotiated in the scene. I would consider raw sex to be part of pig sex. So while it can be riskier, it doesn’t have to be. Is it inherently riskier just because it’s pig sex? I think it depends on the choices and the negotiation.

Why ARE we hearing more about pig play now? I mean I don’t think I’d even heard the term two years ago and all of a sudden we seem to be hearing it everywhere.

There is a resurgence of guys wanting to get down and dirty in their sex play. I think there are a few considerations. For instance, we’ve lost three bathhouses in Toronto over the past seven years. Men like me are now going to the remaining four in the city so doing outreach may be a bit easier – sort of. However we miss doing outreach to the men who are no longer going to the baths.

There’s an online aspect in that there are lots of guys hooking up online, and I think some of those men are wanting to explore riskier activities. Those supposedly ‘vanilla’ sites are full of hungry men who are interested in pig sex, Leather and D/s.

Our men’s Leather and Kink community is somewhat growing slowly and there are more and more men getting into kinkier play it seems.

We want to keep a sex-positive vibe in our city, so while we want guys to play safer, we also want to keep the play hot, and let it get hotter.

It’s also a chance for those working in HIV prevention to find out what is going on in the city and with men who come to the city to play.

I think one year ago when I interviewed you we talked about the role of kink and you told me you personally were seeing an evolution in your sexual development and that you were getting kinkier. But do you think the leather community as a whole is getting kinkier also?

We are definitely seeing the introduction of new ways to play such as the introduction of rubber and other gear. In the electro seminar from this past weekend, we talked about a torture device that Sir created that’s made from unassuming household devices that is safe to use.

We are seeing that when ideas are shared, people get that, “I didn’t know how you can do that!” With sites such as FetLife having over 500,000 kinky men and women members, ideas are definitely going to get shared.

You’ve talked about the eroticization of safe sex. Can you give an example?

Absolutely – so the main concept here is getting a guy so horny and wanting to get fucked, that his ass is twitching, for example, my ass might be teased with a finger or even a hard cock, and I’ll rub back and forth on it, teasing my hole, getting me hornier.   There have been times where I’ve nearly cum just from that.

Next thing is Sir orders me to put the condom on Him. It doesn’t detract from the energy of the scene, I’m still horny because I know that fuck tool is going to be shoved up my ass and Sir’s going to be pleasured using my ass.

With repeated use, it all becomes second nature. Pavlovian Response training, *GRIN*

You are very much about condoms and so is Master Chuck right? But is there a fair amount of barebacking going on in the leather community, do you think? And I’m not talking about poz-on-poz sex. I’m talking about guys who aren’t using condoms, by choice, for any number of reasons.

Master Chuck and I are within our relationships, all about condom use. Within our sex play, showing others how that eroticization can happen and that it doesn’t have to be a drag is important.

We’re not so naïve to believe that the “always use a condom” message is going to be effective. It’s not. The message needs to change, as does the way outreach is done. We also recognize that the OAN (Ontario AIDS Network) and ACT are ahead of the curve on messaging as well. Not many ASOs across the world have a guide designed specifically for BDSM!

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We know men out there are barebacking and we know they will continue to bareback – and that is not a judgement, it just is. There are ways men can reduce the risk. For example, one example we use in outreach - using lube creates a slight barrier and reduces the chance for tears where using absolutely none creates a higher risk of creating more tears and entry points for the virus.  Using just lube is still significantly riskier than using some form of barrier like a condom.. Looking after your health in general. Communication of status and being open and honest is also important. Unfortunately, we also know too well that stigma against positive people happens all too much.

One of the most powerful seminars I have ever attended was at CLAW (Cleveland Leather Annual Weekend) produced by Dave Watt. Dave is the creator of Mr. Friendly and is based in Michigan. At CLAW this year he brought together people who have risky sex, people who are safer sex advocates and even people from the porn industry who create so-called bareback porn. It was AMAZING to bring together all these people to talk about perceptions and messaging. It was agreed that in that session, messaging in the US and tactics have to change.

There seems to be a lot of talk about “risk mitigation strategies” lately. I’m not sure whether that’s another name for harm reduction or not. But give me an example of risk mitigation strategies in the kind of scene that you might have found yourself in.

It is very much a harm reduction strategy. Here is a perfect example - you’re at a sex party with all kinds of guys sucking cock and swallowing cum, meanwhile there are hard potato chips being offered as a snack, which can create cuts in the mouth for entry points for any infection.

If I know I’m going to be sucking cock, I am watching what I eat during the day.

I want to talk about the role of poz guys in your community. I worked on the HIVStigma.com campaign a couple of years ago with Brian, and one of the themes we explored in that campaign was how difficult it was for people who were HIV to disclose their status to sex partners. How does that issue pan out in the leather community, do you think? Any different?

I would hope that men in the Leather community would be a bit more open to playing with men who are positive. As I mentioned earlier, I had my own misgivings and misconceptions about Leather and I am glad I have grown. I’d hope my Leather brothers are willing to be self-aware enough to grow in similar ways. I suspect that the topic of status comes up more within negotiation depending on the play that people get into.

Does the issue of stigma pan out differently? Honestly I don’t know.

Have there been openly poz leather title holders?

Absolutely!

Is it common for people in the leather community in your experience to be poz friendly, wiling to have sex with HIV-positive men?

I would hope so. If someone were to give attitude to one of my friends who happens to be poz, they would certainly get an earful quickly if not from me, then from others in the community.

This is a VERY hypothetical question, but how do you think your life would change if you suddenly found out you were HIV-positive. I’m thinking about your life as member of the leather scene and the Family in particular?

I know I would have the support of my family around me. My community would rally around me because we do that for each other. My collar with Sir would not change and my relationship with my partner would not change. As with any life changing experience, there would be the standard emotional reactions that anyone who finds out they are now positive today would have.

Iain, you’ve been so forthcoming, and we’ve covered a lot of material. It’s been fascinating. THANK YOU! Anything else you’d like to say?

Thank you very much for the opportunity to allow your readers to learn a bit more about Leather. As much as we may be mysterious, or different, we’re really a bunch of really interesting people who value deep connections.

You’ve been extremely generous with your time and I’ve probably asked you all kinds of questions I shouldn't have, so sorry for that, if I have. But again, thank you so much for doing this. We really appreciate you talking to PositiveLite.

xbobbdsm4

 boy iain's blog is here http://boy.mathan.ca/ On twitter boy iain is here: @mathan416

Master Chuck’s blog is here: http://masterchuck.ca/blog/

See also LeatherSIR Canada http://www.leathersircanada.com/

Aug23

The David Bromstad Interview

Tuesday, 23 August 2011 Written by // Bob Leahy - Editor Categories // Contributors, Features and Interviews, Health, Treatment, Bob Leahy

We talk to HGTV design guru David Bromstad, star of Color Splash and winner of season one of Design Star, about HIV, testing – and design ideas for HIVers on a budget.

The David Bromstad Interview

David Bromstad was the Season One winner of the hit HGTV show Design Star. He went on to host his own show home design Color Splash, which has currently racked up more than more than 100 episodes. Meanwhile he continues to appear on Design Star each week as a mentor to each season’s contestants.

Bromstad is also an artist. You can see some of his work here. He’s a busy man. He’s gay too. He’s also very personable and extremely goodlooking.

In truth, I wanted to ask him a) if he was - you know - available and b) if he liked older (poz) men. But instead I put on my PositiveLite hat, my mission being to find out about the “Know Yourself: Get HIV Tested” initiative he's spokesperson for. It’s sponsored by Janssen Therapeutics, formerly Tibotec, makers of several HIV medications you may know and love. For instance, Janssen makes two from the smorgasbord that I take – Prezista (Darunavir) and Intelence (Etravirine).

You know, we repeat the need for HIV testing so often we sometimes need to remind ourself of the rationale. Simply put, we need to bring in to the fold those 50% or so of folks who are HIV+ but don’t know it. We need to get them on treatment, if that’s appropriate – their viral loads are often quite high - and get them getting serious about safer sex, if that’s appropriate too.

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Simple stuff really. The drug companies are getting involved in testing campaigns like this because, to be blunt, it’s good business for them, but also to fill the void left by those public health/HIV agencies NOT conducting high profile testing campaigns – and that, if you think about it, includes a lot of them. Anyway, here are excerpts from Janssen’s press release:

“Bromstad will draw upon his art and design skills in “Know Yourself: Get HIV Tested” to create a mural that can inspire people to take action and get tested.  This initiative has a special focus on those who are at higher risk of HIV infection, including members of the gay community.

“Knowledge is one of the most powerful tools in fighting HIV, and you have to get tested to know your status,” said Bromstad.  “I am especially passionate about HIV testing and education because it particularly affects the community of which I’m proud to belong. I want to raise awareness of the importance of testing by using something I know well and am also passionate about:  art and design.  Join me by getting tested and encouraging others to do the same.”

"Bromstad, an accomplished artist and muralist and one of the most celebrated interior design personalities on television today, will be designing and painting a mural that will bring to life the importance of HIV testing and inspire members of the community to take action. The mural will be unveiled at an event in New York City in September, in recognition of Gay Men's HIV/AIDS Awareness Day."

"In addition to the Know Yourself: Get HIV Tested mural initiative, Bromstad previously participated in an educational video focused on HIV testing awareness along with healthcare providers specializing in HIV care, HIV-positive individuals and HIV educators.”

That video can be viewed here by the way.  A short video highlight is posted below

So, that’s the background. On with the interview.

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Bob Leahy: David, thank you so much for talking to PositiveLite.com. For your collaboration with Janssen Therapeutics and their "Know Yourself: Get Tested "initiative you made a video with them. But the next step was for you to design and paint a travelling mural to raise awareness about HIV and AIDS. Tell us what themes you want to explore in that mural in particular.

David Bromstad” I wanted to make sure the mural was simple, clean, graphic, uplifting and inspirational, but at the same time I wanted the mural to have an impact on people and portray a message.

It’s to be unveiled In September in recognition of Gay Men’s HIV/AIDS Awareness Day. I guess that raises the question of how well you think HIV negative men are informed about HIV in 2011? Or do they really want to hear about it?

I don’t think that they are as informed as they should be.   I feel that today, because it’s a manageable disease, people tend to brush it off. I also feel the younger generation must be educated and informed, they have the ability to make a huge impact on the future of HIV

Has the schedule been worked out yet as to where the mural will be displayed? I’m thinking in particular if it will come to Canada (hint hint)?

The details of where the mural will be displayed are still being formulated. I do know that the first stop will be NYC.   As far as Canada….I would love to see the mural displayed in your fabulous country.

Tell us why you chose to support the :Know Yourself: Get Tested" campaign.

I wanted to be a part of this campaign; it’s something that means a lot to me. I have several friends that are HIV positive and I wanted to be a part of a campaign that will impact people’s thoughts and decisions when it comes to HIV and its prevention.

Do you think gay men are still scared of catching HIV or has the fact that it has become a manageable condition made them a bit more relaxed – perhaps too relaxed - about it.

Exactly! Gay men are less afraid of catching the virus because of manageability of the disease presently. It’s great that the disease is manageable, but it’s still a disease and still needs treatment, and people need to be educated and informed.

How about HIV testing? Do you think some men are too scared to get the results that they don’t get tested?

Absolutely! Fear is the driving force of people not getting tested. I think they feel if they ignore it, it will go away. This is definitely not the case. The longer someone waits, the more people can become infected. Testing is essential, not only for yourself, but for others as well.

The entertainment industry was very visible a decade or two ago in supporting the AIDS cause but there haven’t been many red ribbons seen on Academy Awards presenters, for instance, for some time. Why is that, do you think?

A decade or two ago HIV was a health scare and was a death sentence. Now because of the manageability of it people think that everything is under control, and we don’t need to pay attention or support. This happens a lot in the entertainment industry and TV in general. Look at Haiti, Japan, New Orleans. Once not seen on television, people tend to forget. We need to keep these issues alive in people’s minds as well as in people;s hearts.

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There has always been a huge stigma attached to HIV, and people living with HIV still experience that. How do you think we as a society can move towards reducing that stigma?

I think education is the key to reducing the stigma behind HIV. The more people are educated the more knowledge they will have and therefore the stigma will slowly reduce.   People are afraid, and when people are not educated, they become ignorant.

Do you see any reluctance of negative gay men to date openly positive guys?

In some cases, absolutely, and I think that’s normal. I think it’s normal to have some reservation. I think in the back of someone’s mind who is negative and dates someone positive, they always have a little bit of fear of contracting the virus. People are cautious. Do I think a negative and positive person can have a successful relationship?  Absolutely!

I want to ask you a couple of design questions. Many people living with HIV are on a tight budget and often live in small spaces. What’s your top design tip for transforming a small space in to a place that gives off positive vibes, in a good way? And on a budget?

The easiest and most affordable way to change the look of your space is to paint it. Adding touches of color through pillows, throws and accessories is also an inexpensive way to spruce up a dull room.

You’ve said “I also believe rooms should have some sort of humour and make you smile” How can I make my office smile at me?

Paint, artwork, area rugs, objects and things that bring a smile to yourself. Bring in pieces that you like. You spend a lot of your time in your office, so make it an extension of your home and your personality. Put a television in there and turn on Color Splash!

You favorite color is “acid yellow green”. Mine too. Can relationships survive, though, if each partner has entirely different tastes in design, or where one hates the other’s colour choices?

Yes! We deal with this all the time on the show. There are always colors and styles that a couple can agree upon. It’s coming to the point where each of you can talk about your different styles is a whole other question.  You have to reach a common ground when it comes to two different tastes and styles in the same home.

Good tips, David. Good luck with the campaign and again, thank you so much for talking to PositiveLite. We really appreciate it.

Aug22

A senior moment: sero-conversion late in life.

Monday, 22 August 2011 Written by // John McCullagh - Publisher Categories // Health, John McCullagh

John McCullagh on being diagnosed with HIV in later life.

A senior moment: sero-conversion late in life.

I’m a senior citizen and a gay man living with HIV. I’m not the only gay HIVer of my generation, of course, but I’m perhaps different from most in that I was diagnosed with HIV at an older age, rather than when I was in my 20s, 30s or 40s. Growing old gracefully while livinng with HIV is the issue that frames my life.

Being diagnosed with HIV in later life was not as scary as it would have been if I’d received the news ten or more years earlier, as many of my friends had. That’s because I knew that it was no longer a death sentence but rather a chronic illness that could be managed effectively with medication. But it was a wake-up call. Clearly my life had changed irrevocably, so I was going to have to evaluate what I’d been doing and plan for a different future.

I’m fortunate in having a physician who’s experienced in treating patients with HIV. For years, I’d been going to him for HIV tests every six months until one day I visited his office complaining of a sore throat that wouldn’t go away, along with a nasty rash that had developed all over my body, he immediately suspected a seroconversion illness, which it proved to be. He provided me with much reassurance along with helpful information about the effects of the virus on my body and on my overall health, lifestyle changes that would be necessary and my options around treatment.

I knew the exact date - just three weeks prior to the beginning of my seroconversion illness - that I’d been infected because I’d had sex only once in the previous two months. Because I’d been infected so recently, my doctor and I decided that I’d go on antiretroviral medication right away. Apparently, there’s a growing body of research that shows that if treatment is started shortly after seroconversion it’s likely that less permanent damage would be done to the immune system. So far, my meds are proving effective: I’ve experienced no side effects, my CD4 count is within the normal range and my viral load is undetectable.

Because I believe that knowledge is power, I read as much about HIV as I could find, both in print and online, particularly around treatment issues and other aspects of managing my health. More recently, I discovered PositiveLite and have been inspired by the personal stories of the women and men featured here. When I wrote about this to the guys who run the site - Brian Finch and Bob Leahy - they suggested that I make my own regular contribution to it. And so here I am!

In my posts I plan to blog about what it’s like learning to live with HIV later in life, about adjusting to no longer working and living on a pension income, about my support network, my life in Toronto, my passions and peeves and my successes and failures. I know my HIV story is not unique - there’s an increasing number of men who are seroconverting in middle age or later - but it’s not something we hear a lot about. So an important motivation for me to write about my experiences is the hope that what I have to share may help others who’ve been diagnosed later in life and to let them know that they’re not alone. Wish me luck!

Jul20

IAS ROME 2011: Last day "I got AIDS for this?" Prevention Prevention Prevention

Wednesday, 20 July 2011 Written by // Brian Finch - Founder Categories // International AIDS Conference , Events, Contributors, Brian Finch

IAS Rome conference endsonf very optimistic note because of robust prevention data, but is it worth breaking out the champagne?

IAS ROME 2011: Last day

Two things stand out from the IAS 2011 conference programme. The first is that, overwhelmingly, the most exciting news from Rome will be about prevention...the second is that there is relatively little news here about new antiretrovirals to combat HIV, although what there is is encouraging.

Caspar Thomson, NAM's Executive Director

This pretty much sums up a lot of the conference. Additionally due to the fact that internet access is rare and expensive, I've had to take a different approach to this conference. I will have to provide my Coles Notes, and several summaries after I arrive at home as it is too difficult to synthesize what has been going on right on the spot, as this is where I have access to internet, without a chance to think and properly read. 

This conference is about prevention. Prevention by keeping people's viral load down through studies of couples, and the use of PreP, pre-exposure medication to prevent infection. 

Yesterday there was a demo and press conference about The Patent Pool, which I got some video from one of the organizers. I will process the video and post in more detail about the companies that are not participating in this initiative that would allow for cheaper generics out to the developing countries quicker. 

I spoke to activist Jim Prentice about his thoughts on the conference and have a video chat with him as well. He is very excited about the prevention data that is coming out. 

One researcher said during a presentation, "As for the drugs we have, this may be as good as it gets for awhile."

I really hope not. The studies are really about using existing drugs in ways to better treat the treatment naive (those who have never been treated). Once I have an opportunity to look more at some of the studies and chat with a few more folks I'll have a better picture, but I wouldn't hold out any high hopes new on that front.

The consensus is that initiating treatment between 350 and 500 T4 cells (CD4) is the way to go. We are back to the old. Some of us remember when  it was recommended to begin at less than 500. 

It is very difficult to tease out what are the long term effects of the antiretroviral medications, HIV, aging, lifestyle, and our personal genetics.

Agreement seems to be that more study is required on how to treat HIV as a inflammatory disease. It is similar to another virus CMV which can remain without being noticed, slowly chipping away at the body for decades where it finally takes its toll. 

Smoking, which I started up again, and when I get back home I will dutifully stop, is a big lifestyle factor in health and cardiovascular disease, along with the use of a particular class of medication, Protease Inhibitors. 

For women, these prevention technologies are welcome news, and we have to be careful not to always look at prevention through a North American lens. The more prevention methods that are available to them, the more they can be in control in their lives where in many cases they have no power at all. 

Although the break through data on an HIV - person taking medication to prevent passing on to their partners has worked astonishingly well, the question during the conference has changed to "What if?" to "What now?" 

One thing that irked me was in a presentation about prevention, "unintended consequences" was worry that us HIV positive people may feel free license to engage in high risk sex because of this low viral load status and the data about the lowered infection risk. Once again, we are the bad people to watch out for. I wanted to get t-shirts saying, "Bad Behaviour"! 

It is too early for me to say if there was nothing new on the medication front for people with high resistance levels. Existing drugs are definitely being look at new ways, but it's not feeling optimistic given the statement above from Caspar Thomson.

The next international AIDS conference is in Washington in a year from now, and this is where I'd keep my eyes open for new drugs. I do know there has been investigations into drugs that could be taken only once a week, and new generations of existing classes. 

One note on the conference, which really said a lot was how pathetic the positive lounge was. Don't get me wrong, I don't expect to find 5 star services, but I do think proper snacks and rest places would be nice. 

Screen_shot_2011-07-20_at_1.40.09_PM

I walked in to the lounge in the very tucked away and hidden place and was greeted by on my left several tall round tables to sit at, a few chairs to sit and coffee table. On the other side was a long table with a bit of coffee, cookies and brownie squares. They did bring some fruit in on the second day. 

Above the table was a note apologizing saying that they were forced to use the venue caterer and they were very expensive to use thus limiting what they could do. 

This says it all. It's like the IAS threw them a 100 Euro bill and said that's it. I wonder how many five star hotel speakers were put up in? I wonder how many high-end restaurants meetings took place in? What did they spend on lighting? 

What do we get? I summed it up last night with, "I got AIDS for this?" 

There was a huge lack of diverse gender involvement that was quite noticeable. 

So this conference has been a mixed bag that is going to take some time to process. I will be looking out for other people's view on the conference and the outcomes once back in Toronto. 

Jun16

Mathew Leonardi discusses his research into Pre-Exposure Prophylaxis (PrEP)

Thursday, 16 June 2011 Written by // Ontario HIV Treatment Network - Research Categories // Events, Features and Interviews, Health, Ontario HIV Treatment Network

Lori Chambers of the Ontario HIV Treatment Network (OHTN) talks with University of Toronto's Mathew Leonardi about his research on pre-exposure prophylaxis (PrEP) for HIV in MSM

Mathew Leonardi discusses his research into Pre-Exposure Prophylaxis (PrEP)

Lori Chambers of the Ontario HIV Treatment Network (OHTN) talks with University of Toronto's Mathew Leonardi about his research on pre-exposure prophylaxis (PrEP) for HIV in men who have sex with men (MSM) in Toronto. 

Mathew describes PrEP as "a new, unproven method that HIV negative individuals could use to reduce their risk of HIV acquisition by taking an anti-retroviral medication." Mathew looked at the level of awareness, the usage and willingness to use PrEP in the future among MSM in downtown Toronto prior to the publication of the landmark iPrEx trial results.

Mathew was a presenter at the 13th Annual OHTN Research Conference in Toronto on November 15, 2010.

For more information the OHTN please visit their website.