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Articles tagged with: Contributors

Dec07

A lifetime of achievement

Wednesday, 07 December 2011 Written by // Bob Leahy - Editor Categories // Community Events, Activism, Inspire Awards , Events, Features and Interviews, Bob Leahy

Bob Leahy interviews the remarkable human rights trailblazer and transman Boyd Kodak, one of the recipients of the Inspire Lifetime Achievement Awards being honoured December 14 in Toronto.

A lifetime of achievement

Boyd Kodak is a musician, writer, filmmaker and festival curator. And that's just the start!~

Bob Leahy: Congratulations on being honoured with an Inspire Award for Lifetime Achievement in our community. I see the awards ceremony is coming up December 14.  But first things first. What are you going to wear?

Boyd Kodak: So excited, got some awesome tails…always wanted to wear tails…hot new shoes in shades of pewter…still looking for just the right bowtie :~)

BL: Seriously, tell me what receiving this award means to you.

BK: Wow, to receive this award is an incredible honour for me, and to be in such distinguished company as the lovely Michelle Dubarry and the late Jack Layton, is truly amazing. I think it’s important to remember our past, while we continue our move forward. The Inspire Award initiative to celebrate our GLBTQ history, and be all inclusive, united as a community in the recognition of our achievements, shows all the work was worth it. There have been many hard working activists, of which I was privileged to be a part of, that helped make a difference. It’s great to be included, recognised and appreciated.

BL: I want to talk about your trans journey a bit. When did it start? And does it ever finish?

BK: I started my transition in 1997. I was doing some work with a lesbian/gaynews magazine show at the time. People would send in requests for stories. One came a few times from a group called TTAC –Toronto Transgender Action Committee. I agreed to cover their story, and met some of the best people I had met my whole life. Beautiful and brave people who were standing up for their identities and that of those they loved. I finally found my perfect fit.

My journey will never finish, because for me it includes continually building community and continuing outreach for understanding and acceptance. It also means me reaching out through my art as well as activism.

I have started a new project that involves writing and recording music and a musical about my life, in collaboration with the talented performer and community favourite Carrie Chesnutt. I will publically identify as trans and continue my efforts to help promote awareness and understanding.

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BL: I imagine it was harder back then to go through that gender transitionprocess than it is today?

BK: Harder in many ways. There was very little community when I first transitioned. There was a LG community, but not a LGBTQ community. There wasn’t the community support, unification and services that there are now. There weren’t health centers and doctors to help. There was just the Clarke, with some limited funding and big hoops.

It’s still not easy. Surgery is expensive, if you go that route.

BL: What would you say to a fifteen year old questioning their gender identity?

BK: I would tell them they are not alone, they are not wrong or bad. Try to love yourself, be proud, be strong and reach out. There is more acceptance and understanding of gender identity in trans youth since there has been more education and available resources. When I first meet some of the people in TTAC, there was a beautiful woman and her most amazing mother. Born male, he was taken from his mother, locked up and given electric shock therapy as a youth. The mother fought for years to get her child back and help her through her transition. Thank goodness they don’t do things like that in Canada anymore.

I first remember identifying and telling my parents I was a boy at 2 years old.

BL: You have been hugely active in human rights, Boyd.  For those who don’t know your history, tell us about your personal impact on the Ontario Human Rights Code?

BK: Prior to my transition I lived as a lesbian. I came out publically in the 70’s, and began helping in the fight for equal rights.  I was working in an executive position in the private sector, and was then known as Jan Waterman. In 1988, I was escorted out of my office and out of the building for refusing to agree to homophobic action orders given to me on the company’s direction. They wanted me to disband a group of friends that happened to be gay & lesbian (tell them they had to remain quiet, to keep to themselves and not fraternize, they were not welcome to come to the Christmas party) and to fire someone. I filed a human rights compliant in 1988, and in 1993, won a precedent setting case in Ontario opposing sexual orientation discrimination in the workplace. There is an exhibit about this on display in the Canadian GLBT Archives. The case Waterman vs National Life is specifically mentioned in the Ontario Human Rights Code and is still used in Teaching Human Rights in Ontario. The results of this case made it law that no one fear persecution, discrimination or loss of employment due to their sexual orientation. This historical achievement is referred to as the beginning of Gay and Lesbian history in Canada. It is also included in the Gay & Lesbian History Timelines.

BL: Amazing.  Now, clearly trans issues have come a long way, but what more needs to be done?

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BK: Sexual orientation and trans issues have come along way, but lots more needs to be done.

In Canada, the Northwest Territories is the only provincial/territorial jurisdiction to include gender identity in their Human Rights Code. This is so not acceptable. There is now the Trans Lobby Group with numerous activists like Susan Gapka and Davina Hader working tirelessly for these issues to be recognized and resolved.

BL: Have you done any work on trans/HIV issues?

BK: Yes, I've done a lot of volunteer work to raise funds for AIDS organizations and did a series of video-making workshops for children affected by HIV. With regards to trans/HIV issues, I also have been involved with filming panels, PASAN and programs used in university libraries and teaching sex ed in high schools.

BL: You’ve also been very active in the arts and film in particular? Tell us what you’re most proud of there.

BK: When I started working with film and festivals, there were trans programs that screened work about us, but not by us. I was the first trans person to be on the programing committee of a gay and lesbian film festival, and became involved with curating programs of work by trans artists for many film festivals worldwide.

In 1998, my creative partner Cat Grant and I, began to curate themed programs within trans programing. As opposed to just being about transitioning, they were about our history, our romances, our loved ones, our activism. I used my studios and helped many artists to get their work out. In 2001, I became Executive Director of the Counting Past 2 TS/IS/TG Film Festival, which ran 7 days. It became the biggest festival of its kind, and the first of its kind to have provincial and municipal funding.

BL: What’s the state of queer cinema right now, would you say?

BK: Again queer cinema has come such a long way. When I started working with the festivals I would go around to screening committees and give workshops on trans issues to committee members. I remember placing the first few trans people amongst screening committee members. Now festivals regularly include trans people on their screening committees and some even have specific trans screening committees. I do want to mention that I am thrilled that the Inspire Awards are not only including the trans spectrum in the awards recognition, but are including trans arts in the evening. I will be performing two original songs with my new creative partner Carrie Chesnutt, and work representative of and by the trans community will be included in the silent art auction.

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BL: I want to ask you three questions that are not so serious, but are intended to get us to know Boyd Kodak the person.  So . your favourite restaurant and what you would order there?

BK: Dinner : Fresh – Black Bean Burrito, Cherry Pom Smoothie

Dessert :  Organic Chocolate/Raspberry Cake and Champagne

BL: Your opinion of Glee?

BK: Some great voices. I support their efforts to bring issues to the forefront, but some fairy tale endings. There’s going to be a performance by the Etobicoke School of the Arts Glee club, at the reception…very cool.

BL: What does Boyd Kodak want for Christmas?

BK: Hmmm, tough question. Of course I would like for the people in this world to learn to love each other better, and live in peace. I would like a cure for the horrific illnesses amongst us and for the suffering to end. A wish just for me, the opportunity to continue in my efforts to help promote awareness, understanding, acceptance and love through my creative endeavors would be perfect.

BL: OK, we lied. Here’s a fourth. Tell us something about Boyd Kodak that nobody (or hardly anybody) knows.

My best friend calls me Sonny, haha, but in a good encouraging way.

BL: Finally, Boyd, you’ve clearly had a lot of accomplishments and the Inspire Award recognizes that.  But what are you most proud of about your life?

BK: Another really hard one. I am most proud of never giving up, helping create a united community and staying positive.  I guess, just trying to stand up for what’s right.

BL: Great! Thanks for talking to us Boyd – and see you December 14th.

BK: Thank you, can’t wait!

The Inspire Lifetime Achievement Awards take place December 14, 2011 at the Courtyard Marriott, Toronto.  Tickets and more information here.

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Nov28

Feature Interview: Bob Leahy talks sex with Todd Klinck

Monday, 28 November 2011 Written by // Bob Leahy - Editor Categories // Activism, Gay Men, Features and Interviews, Population Specific , Sex and Sexuality , Bob Leahy

In this candid interview, full of insights in to what makes him tick, Todd shares what it’s like being a young pro dom, making porn, running a pansexual playground with trans legend Mandy Goodhandy and much more.

Feature Interview: Bob Leahy talks sex with Todd Klinck

Todd Klinck is a well known figure in the Toronto alternative club scene, known too for his past work as a young dom in the sex trade, with a nightclub in the burbs featuring shemale strippers, for making porn with a kink twist, for being edgy and out - and outspoken, but he’s much more than that.  Here’s the Wikepedia version of Todd Klinck’s life

Todd Klinck (born November 15, 1974 in Windsor, Ontario) is a Canadian writer, nightclub owner and pornography producer. Klinck moved to Toronto at age 18 to study theatre at York University, but dropped out to focus on his career. In 1996, his novel Tacones (High Heels) was the winner of the Three-Day Novel Contest, and was published by Anvil Press to strong reviews in the Toronto Star and Quill and Quire. Klinck also collaborated with John Palmer and Jaie Laplante on the screenplay for the 2004 film Sugar, which garnered a nomination for Best Adapted Screenplay at the 25th Genie Awards, and was a columnist for fab until 2005. He wrote an online only column for Xtra! magazine called "Sex Play" in 2009, and a column called "Porndoggy" in the same publication for most of 2010. His writing has been published in the National Post, Saturday Night magazine, and Bil Bo K (Belgium).

Klinck and his business partner Mandy Goodhandy have launched several sex businesses in the Toronto area, including a transgender strip club, "The Lounge", an adult DVD production company, "Mayhem North", and a porn site, "Amateur Canadian Guys". In 2006 they opened a pansexual nightclub "Goodhandy's" located in downtown Toronto. Klinck has also worked as a professional BDSM dominant, and has appeared on the television series KinK.

With Goodhandy, Klinck was chosen to be the Grand Marshall of the Pride Toronto 2010 parade.

Bob Leahy: Todd, thank you for talking to PositiveLite.com. I want to ask you first, you’ve spent most of your life in the sex industry, in one way or another. What does your mom think of all this?

Todd Klinck: My mom was pretty ahead of her time, Bob. She raised us to be feminists, encouraged atheism (or at least agnosticism) and to question conventional thought. Because of that, when I came out to her about my sex work, it only required that I explained a little bit about it, so that she understood the politics and was reassured about typical motherly safety concerns. She was a card carrying member of Mensa, so it's not difficult to explain things to her and gain her acceptance.

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BL: OK. I want to talk about how you got in to it. You started in 1996, didn’t you, when you were quite young? What was it like being a beginner escort in those early days.

TK: It was pre-internet. A totally different world. There were fewer opportunities for people to have discreet casual sex, and even fewer for paid sex. I found the clients to be very respectful of my set rules about safer sex, about pricing, and limitations. I found the closeted guys to be easier to deal with than guys who were already out as gay.

I've mentored some young escorts over the past couple years, and can say that much has changed. People have so many more options for free sex encounters, and in some ways, the slight normalization of the sex business has made people more likely to think it's OK to haggle and treat the boys with less respect. That's just my interpretation based on the experiences of several younger boys in recent years. There are also many wonderful clients who hire escorts, and I have heard lots about them also. The main difference, that you may find interesting for readers of this particular site, is that when I started in 1996, I was able to insist on condoms for oral sex with little to no resistance. Boys I have mentored tell me that it is absolutely unheard of with current clients.

BL: Did you go for the dom BDSM niche market right away?

TK: I started as a “boy escort” because I was 21 at the time, and quite thin. I knew little about BDSM, but several years in, I acquired one regular client who was extremely into BDSM. Our relationship evolved, and I learned immensely from him. He eventually became my official slave, has my name tattooed on his ass, and was a regular subject in my former column at fab. He even guest wrote a couple of my columns, from his perspective.

My evolution into professional dominance started in my mid 20's, and was kind of organic as I moved forward. I discovered what my areas of expertise were, and nurtured them, and collected regular clients who liked what I did. I took several breaks from escorting throughout my 20's, because of other work, and for mental sanity, and when I returned to the business closer to 30 years old, I exclusively specialized in pro domination. Doing “regular” sexual services did not fit where my headspace was at the time. Of course there is often sexual behaviour included in BDSM, but I liked the distance that pro domming gave me, the control of the situation. I slowly started releasing clients in my early 30's, keeping only the ones that I enjoyed a lot. I have not ever officially retired, I still have one spanking client who calls me every couple years and if I'm available I'll give him a good beating, but my lifestyle and work make doing it not that viable. And I don't have that much interest in doing it.

BL: Why did you leave, Todd?  Was the thrill of it gone by then?

TK: I didn't do it for the thrill, and I didn't leave it because the thrill was gone. I did it for a lot of other reasons – wanted something that paid well while working on my writing, wanted to exploit my youth for my own benefit, probably some natural exhibitionism and narcissism, and a strong sense of the politics of it. I felt passionately from before I even placed my first ad about the importance of being one of the very few out male escorts. It bothered me that I saw very few examples of males who were in the gay scene, challenging the norms about sex work. I knew I had the strong foundation that my mother gave me, that I could do it, and not be ashamed, and handle it. It was like a personal challenge. I considered it for nearly a year before I started. I hung out with t-girl escorts, met some male street hustlers, other escorts, got my head around the situation before beginning.

BL:  After that, you had a strip club out in Mississauga, the Lounge, for a while, right? That seemed like a daring move at the time. Location-wise and concept-wise. I’m guessing it didn’t work out financially?

TK: Mandy Goodhandy is my business partner, and the creative and driving force behind much of what we do. She has a long history in the nightclub business, and yes, she is very, very daring. The Lounge was not ever officially my venture with her. I did not have the balls she had, in terms of a partnership. I had just gone bankrupt, and told her I would help her, be her right hand man, but I didn't want any official responsibilities. From a financial point of view, it was actually fairly low risk. We were renting the basement of a straight strip club. She had to pay for ads in the paper, but had already created an internet presence on her own, with Ladyplus.com (which has now evolved into a Mayhem North owned social networking site with more than 4,000 members, growing daily).

We started with shemale strippers, and it was quite lucrative from the beginning for everyone involved. The girls made very good money doing private dances, the cover charge was high, I worked as a DJ and waiter and got good tips, everything was good. It was very underground, in a remote location, but Mandy had the vision to know that Mississauga is actually the perfect place for a shemale strip event. Because it's straight suburban folks who are connoisseurs of the ladies “with something extra”. The location made it easy for guys to sneak in, have their experience, and leave without causing any suspicion.

We became world famous at that location – I am not being pretentious – Mandy's shemale events were known all over, because of the internet. We had people visit from Japan, all over the States, Europe. All to this, quite honestly, divey little basement party room in a pretty skeezy straight strip club. We actually kept the strippers running from 2002 to 2009, even the first 3 years that Goodhandy's was running. We only ended up eventually closing it because it was too challenging to manage both Goodhandy's the club, and the Lounge. We wanted everything to be under one roof.

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BL:  I didn’t know that!  Anyway, then you went in to making porn, Mayhem North and webcam stuff like Amateur Canadian Guys. Tell me about that.

TK: The Lounge was a money maker for the shemale strippers. But we also ran male events, Mandy despises the word “stripper” and chose to promote them as “nude boys”. Those events had a cult following, but were never profitable. You cannot charge gay men high enough cover to make it worthwhile financially. But we were doing it to gather content for Mayhem North (which is a corporation held equally in equal partnership by me and Mandy). We started shooting scenes after hours at the Lounge, and shooting solo jerk off videos in this little tiny coat check room on a mini-van car seat that someone had left behind. It was all quite ghetto, but that became our aesthetic. We treated the models as people, well, because they are people. We weren't into plot-oriented porn, and just shot “boys being boys”.

BL: You used to write about porn in Xtra too. Tell me what you look for in porn you watch. Who is your favourite studio? Performer? Movie?

TK: My current favourite studio is Alexander Pictures. Porn is a personal thing. I just happen to quite appreciate black and latin men, and Alexander shoots all of his movies in Brazil. He also has a parallel line where he pretends that he's shooting middle eastern men (but really they are Brazilian). I kind of like that line too, I can get into the fantasy, because it's not like I understand the language anyways, and he's not trying to fool anyone. I like the fact that he is one of the mainstream studios who has achieved a great deal of success while still using condoms in their films. If I had to pick a favorite Alexander title, it'd be “Rio Blatinos” (but really, almost all of his movies have scenes I like).

BL: And your opinion of (bareback porn studio) Treasure Island Media?

TK: Not fond of Treasure Island on the surface, but I have not delved deeply into it to see how much they contexualize their sensibilities. I have issues with bareback porn, and mainly it's with the lack of contexualization. I'm pretty sure I would dislike Treasure Island, from what I've seen in this one documentary film made by the brother of one of it's stars. (It's called “Ryan Sullivan's Island” and it's interesting, as it makes no comment on the studio, it just shows a lot of behind the scene stuff, some of it disturbing).

BL: OK. I want to ask you a few questions about HIV. What responsibilities do sex on premises venues have towards HIV, do you think, or is it a matter strictly up to participants?

TK: I think that sex venues have a responsibility to provide complimentary condoms AND lube, to have adequate lighting, to do anything that they can do reasonably to assist in the dissemination of safer sex literature and supplies. I am involved in a couple sex positive events at my venue (though calling Goodhandy's “a sex club” as it is commonly called, is no longer accurate, in my opinion, because it is only something that is part of certain events, not all events). I do not, however, think that it is the responsibility of the venue to walk around and aim flashlights at peoples’ orifices and demand to know the context of the choice that has been made between two (hopefully) consenting adults.

BL: Let’s explore that a little but more, Todd. With bareback porn, the verdict is still out on how much watching it actually influences sexual behaviour. But what do you think of BB porn being shown in bath-houses for instance? Any issues there?

TK: That is a tricky one. I think it would be more responsible of a bathhouse to not show bareback porn. People could argue that people deserve choice, and I guess they could win that choice, but I would respect a bathhouse owner who made a point of not showing bareback porn. Again, it's context. I'm not against people taking educated risks in life. I'm not against people barebacking. I just find that the porn industry has embraced barebacking with little regard to what it might be doing to society. It's the way they promote it, it's the prevalence of it with no context. So yeah, I have issues with it, and with playing it in bathhouses.

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BL: Do you think young gay men in particular think much about the prospect of getting HIV?

TK: No, I don't. I was speaking to some very young gay boys within the past couple years, and they had ludicrous notions of safer sex. And it made me realize that they had fallen through the cracks in terms of education. They thought that after a couple weeks with a guy, if you said you were “boyfriends”, then you couldn't catch HIV. I asked them about porn, and dug deeper, and it seemed they had been affected by bareback porn to the point where barebacking seemed normal to them. Again, it's about the context – if there was more context to bareback porn, it could even be educational. But it's presented as just something that people do I learned about safer sex in high school, in the early 1990's. It was a mandatory part of gym class. These kids I was talking to obviously had missed that class.

But I think probably the number one reason young people don't think about becoming positive is because there are so few examples of openly POZ people. I went for a few years without getting tested, and thought a lot about how I would react if I tested positive. I knew the challenge of the stigmas. When I tested negative, a very small, irrational part of me even wished that it had been the opposite, because I thought I could help. The thing is this: I run a nightclub, I was involved in the media, I am active in the anonymous sex world and have been for years (parks, bathhouses, online hookups), so I would say I'm not just your average queer guy. I come in contact with A LOT of people, thousands. And I can say that only recently I “know” more than 10 people who are openly POZ. It's not for me to say that people need to be public about their status. Absolutely not. But emotionally and intellectually, it is still something that I question, when I read the stats that show young people are still becoming POZ in fairly steady numbers. I question if things would be different if there were more POZ people out. I want to emphasize – I am very aware it's easy for me to say, and can't even guarantee I'd have the strength to overcome the stigma if I ever did test positive. I am on shaky political ground by even discussing this. But you asked me a question, and I have to answer it honestly.

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BL: Well, thanks, Todd for that.  Now moving on a bit, last year you and Mandy were very much in the spotlight for accepting the role of grand marshals for the  (Toronto) Pride Parade after Alan Li stepped down on the free speech/QuAIA issue. You got mixed press for that. But I liked how you turned it into a chance to spotlight sex-positivity  - sex workers leading the parade and all that. Is all that over with, or do you think some people still are mad at you?

TK: I got a lot of support when we stood our ground, and when I communicated directly to people via several Facebook notes. People who had de-friended me on Facebook came up to me and apologized and told me they were just reacting in anger. I am sure some people still hold a grudge but it's not something that I see or think about much.

BL: Good. Now let’s talk about Goodhandys. It’s very much identified with you and Mandy. How did you meet Mandy first of all?

TK: I met her in an interesting situation. She had a photo-only website, one of the very first shemale porn sites in the world. She needed a male model to wear a mask, and be on a leash. I was that male model. I then became friends with her, and became her resident photographer.

BL: You describe Goodhandy’s as a pansexual playground. Tell me what that means? Tell me what to expect if I arrived there for the first time, say, and it was a LadyPlus party night?

TK: We use the term pansexual playground because pansexual encompasses the whole spectrum of sexuality. We are proud that we've worked with lesbian promoters, queer promoters of all types, nudists, fetishists, and even most recently, we now are working with a straight promoter for an electronic music night.

The Ladyplus parties are nights that provide a discreet place for people (mainly men and couples, but also some ladies) who are sexually attracted to t-girls. And a social space for t-girls and their admirers and supporters also. The sex at Ladyplus parties happens only behind closed doors, in private booths. The energy is sexually charged, because cruising and hooking up are a big part of the environment and atmosphere, but it's also very relaxed and chill. The most common comment I get from our clientele is how mellow the place is, how comfortable the atmosphere is. The guys who like t-girls are often very conflicted about their desires. You know, “What does it mean that I like girls with dicks? Am I gay? Am I bi? Who am I?”  I totally sympathize with these dudes and have really gotten to bond with them and appreciate the uniqueness of their sexual orientation. So yeah, a Ladyplus party is a pretty unpretentious and comfortable environment, and of course as the night progresses it can also get pretty wild and interesting – t-girls are quite flamboyant and exciting and entertaining, and the girls like to dance and show off (we have 2 stripper poles).

BL: Have to admit I’ve never been there, but I’m from out of town. Is it all ages? I mean I’m getting on a bit. Would I feel out of place there?

We are primarily a promoter venue. Let me explain what that means. A “gay bar”, for example, a place like Woody's in Toronto, is a gay bar, 7 days a week. The theme is predictable, customers know what they are getting when they go there, 7 days a week. Maybe there will be a different show or something subtle, but you know it's primarily a gay bar for gay guys, a pub setting, and that's what made it an institution. We are a venue that makes itself available for promoters of all walks of life. So I always tell people “Make sure you check our website before you come by, or you may walk into an all naked men-only party, or a fetish party”. Some people like the surprise, of course, and we have cross-over from event to event, people who have just grown to love the atmosphere. Many of our clientele are “getting on a bit”. Even the younger gay dance parties have older customers, I think it's comfortable for all.

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BL: Good to hear.  Now, I like your tattoos. Who did them? You have six sets of horizontal bands around your arms, all black except one that‘s red. What does that mean?

TK: All of my tattoos except for one were done by Matthew Ellis, of Seven Crowns Tattoo. We went to school together and I like how he works. The bands mean absolutely nothing, they are just decorative. One is red, because when he did the outline for one of the black ones, he used a red sharpie, and I thought “hey, one of them would look kind of cool in red”.

BL: You’ve written one book already (Tacones) and of course it did very well. Ever thought of writing your life story? 

TK: I am interested in writing, but less so in the traditional forms. I’m a big fan of the internet and self publishing and consider even doing interviews like this part of telling my life story. Maybe one day I will write memoirs, after the fact, when I won't get in trouble for telling the whole truth.

BL: Looking back on your life, Todd, what are you most proud of?

TK: I'm most proud of being able to live a creative, evolutionary, organic life, and not having to work for other people. I love running a nightclub and still being involved in the media in my own way and having the autonomy that that sort of lifestyle brings.

BL: Great job! Thanks for talking with us Todd. We really appreciate it, and how candid you’ve been. And good luck with all you’re doing.

Oct06

Patients take the lead: the internet - and blogging - are changing the way people learn about health.

Thursday, 06 October 2011 Written by // Mark S. King - My Fabulous Disease Categories // Social Media, Health, Mark S. King

Mark S King and the social media revolution where patients seek info, help and support online and we hear from bloggers/advocates at the forefront of this paradigm shift in health care delivery.

Patients take the lead: the internet  - and blogging - are changing the way people learn about health.

You’re part of a healthcare revolution in cyberspace, my friends. It’s changing the way people find treatment information, relate to their doctor, and support one another. And you’re about to meet some of the marvellous people who are leading the charge.

Did you know that 80% of internet users spend time gathering health information  That makes it the third most popular online pursuit, following only e-mail and using a search engine (and yes, that means more than porn. Is your mind officially blown?) The ramifications are enormous for patient empowerment – and for the companies who want to reach us as consumers.

In this new video episode of My Fabulous Disease, I attend e-Patient Connections 2011,  a conference devoted to showing healthcare how to reach patients online. You may remember from my previous video blog “Should AIDS Activists and Pharma Just Get Along?” that my relationship with Big Pharma is a complicated one, so this new episode sidesteps most of the e-Patient Conference program and focuses instead on something truly remarkable.

I participated in a gathering of twenty bloggers the day before the conference, all of us living with chronic disease and writing about our experience (watch the episode, and prepare to be inspired).

The meeting, co-sponsored by HealthCentral and Klick Pharma, was a revelation. Never have I had the privilege of meeting so many online advocates living with other health conditions – cancer, diabetes, rheumatoid arthritis, multiple sclerosis, lupus, and more – and hearing about their lives and challenges.

In a day-long session moderated by Digital Health Coalition, the group began drafting a set of values – sort of a digital health consumer Bill of Rights. It’s a work in progress (organizers promise follow up sessions to continue the process) that seeks to define and protect us as “e-patients,” such as transparency when it comes to online messages from pharma, or asking that our physicians get savvy enough to email lab results if we want.

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As much as I tend to view HIV/AIDS as “terminally unique,” there’s something comforting about how much I had in common with the other bloggers. Yes, it did occur to me that I was the only person in the room with a condition that could get me arrested for having sex, for instance, but this wasn’t the time or forum to announce our differences. What we shared, and what they taught me about being a more effective advocate, was considerable.

I’ll let my new friends speak for themselves in the video. Meanwhile, check out their sites, especially if you might be living with one of the conditions they are blogging about. My fellow workshop participants were Eileen Bailey (ADHD) Ann Bartlett (Diabetes), Phil Baumann (Men’s Health), Robert Breining (HIV/AIDS), Donna Cryer (Ulcerative Colitis) , Dave deBronkart (Cancer), Bennett Dunlap (Diabetes), Lisa Emrich (MS and Rheumatoid Arthritis), Amy Gurowitz (Multiple Sclerosis) , PJ Hamel (Breast Cancer, Osteoporosis), Tiffany Peterson (Lupus) , Jenny Pettit (Sjogren’s Syndrome, Fibromyalgia), Teri Robert (Migraine), Casey Quinlan (Cancer), Rudy Sims (Disability), Michael Weiss (Chron’s Disease), and Kelly Young (Rheumatoid Arthitis) .

Finally, those who use the internet (and are discerning about what they find) are far more likely to bring ideas to their care provider, or understand side effects or otherwise take an active role in their care. So keep it up, fellow e-patients!

To paraphrase a golden oldie, the healthcare revolution will be televised… on Youtube and Skype and TheBody and Wego Health and HealthCentral and even right here, on My Fabulous Disease.

Please be well, and as always, you’re welcome to use the “share” feature below to enlighten your friends and colleagues. ;]

Mark

This an abridged version of a blog entry first appearing in Mark S. King’s fabulous blog, My Fabulous Disease. Read it here.  

Sep30

I Love Me: The David Bromstad Mural

Friday, 30 September 2011 Written by // Positively Dating Categories // Positively Dating

Our New York correspondent Positively Dating is on assignment for the unveiling of HGTV design guru David Bromstad’s mural commissioned by the Janssen Therapeutics “Know Yourself; Get HIV Tested” prevention campaign.

Editor’s note: The PositiveLite interview with David Bromstad is here.

On September 20th I had the great fortune to attend the unveiling of David Bromstad’s new mural for The Lesbian, Gay, Bisexual & Transgender Community Center in New York City.

The night started off with a bevy of great speakers: Dr. Brian Baugh from Janssen Therapeutics, Glenda Testone from The Center, Dr. Anita Radis from the Callen Lorde Center, and of course the reason why we all gathered (and the eye candy for the evening) David Bromstad.

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As the mural was being unveiled, David expressed the sentiment behind his creation “Love yourself enough to get tested.” This very simple phrase hit me quite hard; as I, like a lot of people, was initially crippled by fear and put off being tested. The mural itself has a self-affirming power behind its simplicity, with a little cheeky fun thrown in for good measure.

When mingling, I noticed that there were not that many younger people in attendance. In fact, I think I was one of the youngest people in the room and I am thirty-five. This is slightly disheartening when just minutes before, Dr. Radis gave us the statistics that the highest group of new HIV infections are from people under the age of thirty. I know that when I was under thirty I didn’t think that I could ever be effected by this disease and I tested positive nearly a year before my thirtieth birthday.

Unfortunately, I did not get a chance to speak to David about his mural, but I did get to admire his work - and his biceps - from afar. David’s message was simple and I would like to echo his challenge for all of you out there in cyberland; take five family members or five friends and express the importance of getting HIV tested and encourage them to do so - especially for those who are under thirty and think that this disease cannot affect them. Tell them to love themselves enough to get tested, no matter what the results will yield.

Love yourself enough to get tested!

Sep27

A Gay Opera?

Tuesday, 27 September 2011 Written by // John McCullagh - Publisher Categories // Arts and Entertainment, John McCullagh

NEW BLOGGER JOHN McCULLAGH SAYS THE CANADIAN OPERA COMPANY’S PRODUCTION OF GLUCK’S IPHIGÉNIE EN TAURIDE WINS MUSICALLY BUT HE'S DISAPPOINTED BY ITS FAILURE TO REFLECT ITS SAME-SEX LOVING LOVING THEME.

A Gay Opera?

The Canadian Opera Company has opened its sixth season in its new Toronto home, the Four Seasons Centre, with the eighteenth century opera Iphigénie en Tauride. It’s a story of hope, compassion and love set to magnificent music by German composer Christoph Williband Gluck.

Set at the end of the Trojan Wars, the opera is based on the play by the ancient Greek tragedian Euripides. It tells the story of a princess, Iphigénie, who, having been exiled from her Greek homeland, is forced to choose which of two shipwrecked mariners she will sacrifice to appease the gods. It turns out that these two sailors are her brother Oreste and his friend Pylade.

The opera is traditionally presented, as it was in this COC production, as a story of family betrayal and redemption. But much of the core of the opera is the story of the tender love between Oreste and Pylade, who is willing to give up his life for his friend. Marshall Pynkoski, co-artistic director of Toronto’s Opera Atelier, who mounted a production of this opera in 2009, has argued that the relationship between Oreste and Pylade can only properly be understood if they are seen as same-sex lovers.

Unfortunately, Canadian director Robert Carsen does not share this vision in the COC production and presents their relationship as, at best, a bromance. Despite the words of love expressed between the two men in the libretto, and the strong emotions reflected in Gluck’s music, the two men appear as uncomfortable expressing their love for one another on stage as would your average heterosexual male. Oreste and Pylade barely touch one another while Oreste seems to have no such inhibitions when he expresses his love for his sister Iphigénie. Frankly, instead of being a core part of the opera, the non-sexual nature of the men’s relationship as presented in this production was simply an annoying distraction.

The other distraction was the dark set (a black box with virtually no props), relieved only occasionally by flashes of light, and the equally dark, modern day costumes of the performers. The intent, apparently, was to lose the connection to classical antiquity and to highlight the universal nature of the story and the emotions involved. To me, however, the dark set and dark costumes quickly became lugubrious and claustrophobic.

Musically, however, the production was superb. American mezzo-soprano Susan Graham, making her COC debut, was magnificent as Iphigénie, in what has become her signature role. Canadian baritone Russell Braun and Canadian tenor Joseph Kaiser gave thrilling performances as Oreste and Pylade. The COC orchestra, conducted by the young Spaniard Pablo Heras-Casado, and the COC chorus under the direction of Sandra Horst, were, as usual, first rate.

Is this COC production worth seeing? Certainly, for the outstanding musicianship of the singers and orchestra. But if you want a production where the centrality of the love between Oreste and Pylade is honestly presented, you are probably going to have to petition Marshall Pynkoski to revive his Opera Atelier version.

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Remaining performances of the Canadian Opera Company’s Iphigénie en Tauride at the Four Seasons Centre in Toronto are on September 28, October 4, 7, 12 and 15 at 7:30 pm and October 1 at 4:30 pm.

 Book tickets online  anytime, by phone 416 363 8231 (long distance in Canada and the U.S. 1 800 250 4653) Monday to Friday from 10:00 am to 5:00 pm or directly from the Four Seasons Centre box office, 145 Queen Street West, Toronto, Monday to Saturday from 11:00 am to 5:00 pm

Sep23

Crime, Television and Public Perceptions: Thoughts on the Fall Line-Up

Friday, 23 September 2011 Categories // Media, Opinion Pieces

As autumn approaches, we are faced once more by the inevitable. Cooling temperatures, the changing colours of the leaves, the approach of Thanksgiving and, of course, the fall television lineup.

. . . and you need not be an avid television watcher to sample the vast array of presumptuously new “gems” or returning favourites. Whether you remain glued to your flatscreen or take in only the casual newscast, you’re likely to be barraged now by snippets from everything from oddly-paired characters in often absurdly amusing situation comedies to talk shows hosted by often obscure or unexpected hosts with strangely compelling credentials.

Yet one of the more interesting aspects of this year’s lineup, and one that seems to have been trending for some time, is the striking number of both new and returning crime-related dramas. Crime, as well as civil disputes, figure prominently in many “reality” shows, and on cable networks in particular. And the public appeal of courtroom debacles such as Judge Judy as well as police chronicles such as Jail or the now defunct, but once hugely popular, Cops are perfect examples.

The more elaborate and scripted crime-related dramas have become a mainstay in the fall schedules of both the cable and mainstream networks -- alongside other “reality” shows, sporting events, and comedies. And while we could rely on the simplistic argument that we watch what the networks force feed us, what of the counterargument that networks may just be feeding us exactly what we’re hungry for?

So l invite you to speculate with me just a little about our preoccupation with criminal offenders, law enforcement and the administration of criminal justice. Why do some of the networks biggest draws such as the CSI franchise or Criminal Minds persist? And why do so many new crime fighters with new and often uncommon crime-fighting capacities continue to emerge?

xstevetv00Indeed, common sense would suggest that crime and criminals are inherently offensive to most -- these are behaviours that are illegal and punishable. Thus there must be more to this. But what exactly? Obviously, I cannot provide a definitive explanation of the complicated relationship between television content and public opinion and behaviour, but at least two things do come immediately to mind.

The first and perhaps most obvious claim I could make is that there is a sufficient and sustained public interest in crime and criminals. But to move beyond the obvious, even a superficial overview of crime-related programming suggests that this public interest isn’t being met or satisfied by simplistic portrayals of misguided and immoral offenders being quickly and easily pursued, captured and tried by legions of noble and moral civil servants.

Indeed, the longstanding stereotypes of “cops” and “robbers” seem to fail miserably by contemporary standards -- so much so that even the lines between the “good guys” and the “bad guys” are themselves often blurred. Clearly, the “good guys” win out more often than not; and, as viewers, we find some solace and satisfaction in this. Still, this seems a woefully incomplete argument.

One possibility that may also seem obvious, but that gets little public attention, is that we have embraced crime and criminality as inevitable realities of society. In other words, while the rationale behind the very existence of the criminal justice system -- the police, the courts and corrections -- is to reduce, if not eliminate crime we have, in fact, come to understand it as more of a constant struggle with which we must live. Crime drama writers certainly seem to understand this “reality” -- consider the dialogue of our front-line crime fighters who wage their never-ending battles on a daily basis. And if this seems reasonable, consider the potential ramifications of such a claim -- that the crime problem is one that simply cannot be solved.

Interestingly, we can take some direction here from communications expert George Gerbner, a pioneer researcher on the effects of television who coined the term “Mean World Syndrome” to describe the effects of violent criminal content in the mass media. More specifically, Gerbner has suggested that people who watch a lot of television tend to think that the world as an “intimidating and unforgiving place.” In other words, without necessarily attributing cause and effect, it seems as if television crime dramas may somehow both breed and reinforce public cynicism about the world in general.

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A second point of interest relates directly to the crime-fighting strategies that pervade so many of these compelling programs; and of particular interest here is the field of forensic science that, in the most general sense, involves the application of a broad spectrum of sciences to answer questions of interest in the legal system. As I have already suggested, the crime problem and criminality have emerged as far more complicated matters than many might think. Yet even more interesting is the fact that our crime-fighting abilities are apparently also far more advanced than many of us could have imagined. I expect that many of you have come away from watching even a single episode of CSI somewhat more educated, if not amazed, by the daily operations of virtually any major North American city’s crime lab.

And once again the fall lineup includes an even more impressive range of anti-crime tactics, tools and actors. Consider, for example the central premise of the new CBS drama Unforgettable that, according to the network involves a woman “with a rare condition that makes her memory so flawless that every place, every conversation, every moment is forever embedded in her mind.” On a comparable and familiar note, some of you may remember past crime series that involved similarly exotic crime specialists such as psychics and mediums. By contrast, sophisticated crime labs have become far more commonplace. What then might be the ramifications of increased public interest and confidence in the new “science” of crime fighting?

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If Gerbner’s claims are reasonable in that public opinion is indeed skewed by media content, what could we suggest are the effects of this “modernization” of the criminal justice system? One possibility here is the “CSI effect” or “syndrome” that has come to refer to any number of ways that the consistent and often exaggerated portrayal of forensic science in crime dramas may affect public perception and opinion. As such, while crime dramas may create and reaffirm public cynicism about the world, television reliance upon forensics seems to have translated into a somewhat misplaced faith in forensics and forensic evidence. Exactly how and why this faith translates into behaviour remains to be seen; however, there is interesting speculation about its effects upon public demand for forensic evidence in the prosecution of criminal cases -- not to mention the potential consequences for juries and their decisions.

There is so much more that could be said here, and of course there’s an argument to be made for leaving the topic alone altogether. But given the fact that the “effects” of television have been debated so vehemently for years, such speculation about the fall lineup is arguably more than a purely academic exercise.

At the very least, it’s worth considering that many of the new offerings and returning favourites in the fall lineup as more than merely vehicles of entertainment or public education. And given the fact that so many of us have little direct experience especially with serious crime, it’s interesting to think about the relevance of television crime dramas for such things public perceptions that themselves must have some effect upon criminal justice policy.

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