Living with HIV

Patients first

published: August, 07, 2013 Categories // General Health, Health, Research, Living with HIV

What is patient-centred outcomes research (PCOR). Most researchers don't know what that means, and few patients have any idea either. David Phillips explains why it is important to people living with HV.

Patients first

Patient-centred outcomes research (PCOR).  Most researchers don't know what that means, and few patients have any idea either.  Still, it's an emerging field gaining attention in the U.S. and around the world.  It's also one where HIVers need to play an active role by partnering with academics and clinicians to develop and manage research that improves quality of life for ourselves and our communities at-large, instead of letting commercial interests and lab esoterics alone determine resear

Getting to the other side

published: August, 06, 2013 Written by // Bob Leahy - Publisher Categories // Newly Diagnosed, Living with HIV, Opinion Pieces, Population Specific , Bob Leahy - Publisher

Bob Leahy with advice for the newly diagnosed on getting past that initial shock to a place where you can feel good about yourself again, live comfortably with HIV and even become a proudly minted new person.

Getting to the other side

This article first appeared in the blog of Josh Robbins (imstilljosh.com) here.   It took more than a few minutes to sink in; in fact it wasn’t until I was on the streetcar going home from the doctor’s office in downtown Toronto that the enormity of what I had just heard hit me. The actual words “your blood work tested HIV-positive” (or something similar, because twenty years later I don’t remember exactly what was said) were unexpected but not immediately earth-shattering. Inst

Fatigue

published: August, 06, 2013 Written by // Brian Finch - Founder Categories // Health, Living with HIV, Brian Finch

Brian Finch says "I’m tired about talking about fatigue. For as long as I can remember I’ve struggled with my energy levels "

Fatigue

I’m tired about talking about fatigue. For as long as I can remember I’ve struggled with my energy levels. But let’s remember I’m 48 (but best not to use the aging card as this kind of fatigue doesn’t brew with time), and I’ve most likely been positive since I’ve been 17 or 18-years old. Back then I partied a lot, did a lot of weekend drugs that kept me up all night. Hence I attributed my fatigue to my end of week activities. However when I stopped, I wasn’t really feeling th

Old maid?

published: August, 06, 2013 Categories // Dating, Gay Men, Lifestyle, Living with HIV, Opinion Pieces, Population Specific

Our NYC guy Positively Dating on being single and whether he will ever find the relationship he seeks

Old maid?

What constitutes an old maid in this day and age? I don’t mean the card game where you try your best to stick your opponents with the decrepit old women in the rocking chair. I am referring to the dreaded age when your family and friends stop wondering if you will shack up. The age when they give up hope that you will ever find love.  I have been thinking about this quite a lot lately. In all honesty, its mostly because I have a birthday looming - my thirty-seventh birthday to be exact –

The biohazard blog, part six: the afterglow

published: August, 05, 2013 Categories // Gay Men, Living with HIV, Population Specific

Evan Hughes is blogging about getting a biohazard tattoo on his chest to mark his HIV+ status. Last time we went with him to the tattoo studio. In this episode, he talks about the aftermath

May 23rd, 2013 - 11:00 pm I have had the new pics of the tattoo posted on a couple of online profiles and got a lot of positive response.  I also got asked, "what, are you radioactive?"  In answer, no I am not a victim of Chernobyl nor do I glow in the dark, people. I am HIV+.  Yet not one person had anything negative to say about the tattoo, what I did get was a lot more aggressive attempts to get me to break my sero-sorting rule to the point that in my Scruff profile (my profile name i

Your sixth sense; can you trust it?

published: August, 05, 2013 Categories // Gay Men, Lifestyle, Living with HIV, Opinion Pieces, Population Specific

Dave R: It’s that intangible feeling you sometimes get that something’s not quite right…you need to make a choice between fight, fuck or flight. LGBT people use it all the time; Gaydar being a perfect example but can you trust it?

Your sixth sense; can you trust it?

How do I know you’re not an axe murderer planning to store my limbs in the freezer?”  “Do I look like an axe murderer?” Well now there’s the question. Does he look like an axe murderer? Answer…yes…c’mon admit it; that turns you on a little bit! Answer…no…what made you say it then? We often know little about the backgrounds of many of the people we meet and yet we’ll invite them into our homes, tell them our life stories, maybe have sex with them and possibly never s

Suicide: a love story

published: August, 04, 2013 Written by // Mark S. King - My Fabulous Disease Categories // Gay Men, Health, Living with HIV, Population Specific , Mark S. King

Mark S. King and a family secret which reflects how we sometimes used to help those with AIDS in their final days.

Suicide: a love story

“Did I ever tell you about the night that Emil died?” my brother Richard asked me. It was 1992, and AIDS had taken Richard’s lover a full three years earlier. The death ended a love affair that had lasted more than a decade.  I cocked my head. “Well, I was there, Richard, so I mean – “You were there after,” he said, and downed his drink. “Don’t you wonder what it was like just before?” He asked the question nervously, a perfect match for the cigarette he held in one hand

Tackling the MSM epidemic

published: August, 03, 2013 Categories // Gay Men, As Prevention , Treatment Guidelines -including when to start, Research, Health, International , Sexual Health, Revolving Door, Treatment, Living with HIV, Guest Authors, Population Specific

Aidsmap reports strategies to detect and treat MSM with acute infection may be a powerful tool to control HIV epidemics. Immediate HIV treatment is associated with rapid falls in viral load and sustained behaviour change, research shows.

Tackling the MSM epidemic

This article by Roger Pebody first appeared on aidsmap.com here. The detection and control of acute (very recent) HIV infection may be a powerful HIV prevention measure in HIV epidemics in men who have sex with men (MSM), Eugène Kroon of the Thai Red Cross AIDS Research Center told a late breaker session at the 7th International AIDS Society Conference on HIV Pathogenesis, Treatment and Prevention in Kuala Lumpur this week. An HIV testing programme in Bangkok, Thailand, was able to identif

Research for a cure

published: August, 02, 2013 Categories // Features and Interviews, Health, Research, Living with HIV

The CIHR Canadian HIV Trials Network interviews two doctors involved in researching HIV vaccines and immunotherapies with a view to finding a cure for HIV.

Enthusiasm and interest in HIV cure research is starting to build in Canada.  “Five years ago” says Dr. Jonathan Angel,  “there were only two or three researchers in the country with a major interest in the conduct of clinical trials of vaccines and immune-based therapies. Now with advancing science and many more established and young investigators in Canada, we feel the research community is growing and I think we will make many meaningful contributions to this line of researc

Videos we like

published: August, 02, 2013 Written by // Guest Authors - Revolving Door Categories // Social Media, Dating, Youth, Health, Lifestyle, Revolving Door, Treatment, Living with HIV, Guest Authors, Population Specific

Two new short films made for youth by HIV+adolescents pack a punch with calls for understanding of the importance of treatment and the challenges posed by disclosure

Videos we like

Happily ever after Key messages: Don’t give up; happiness is easier to swallow The closest thing to living without HIV is the treatmnet that gives us a happily ever after Spread the word, not the virus Description: The advances in treatment of HIV allows positive people to live normal lives full of all that life has to offer including love, children, quality of life and hope. A group of HIV+ adolescents made this video to encourage other HIV+ people to consider the value of taking t

Angels amongst us

published: August, 02, 2013 Written by // Bob Leahy - Publisher Categories // Gay Men, Arts and Entertainment, Performances, Living with HIV, Population Specific , Bob Leahy - Publisher

Bob Leahy reviews the seminal play about life in the early days of the AIDS epidemic, Angels in America, playing in two parts at Soulpepper Theatre in Toronto until September 14

Angels amongst us

Photo: Cylla von Tiedemann Traditionally, ratings appear at the end of a review. However, because I want you to see this show, I’m going to break that rule and tell you right now that Soulpepper’s production of Angels in America gets four stars (out of four.) It’s a stunning production in all respects and I suspect is destined for Dora nominations aplenty. This epic play – it requires two nights to see Part One (Millennium Approaches) and Part Two (Perestroika) and over six well spen

Don't ask, don't tell! Thoughts on HIV disclosure

published: August, 01, 2013 Written by // Guest Authors - Revolving Door Categories // Women, Revolving Door, Living with HIV, Guest Authors, Opinion Pieces, Population Specific

From the Body.com, Lynda Arnold tells how she disclosed to her family, friends and colleagues. But she says “ disclosing one's HIV status is such a personal decision. I don't think there's a right or wrong way to do it.”

Don't ask, don't tell! Thoughts on HIV disclosure

This article by Lynda Arnold first appeared on TheBody.com here.  The concept of disclosing one's HIV status is something that can bring much fear and pain to a person infected with HIV. There are many scenarios that really deserve to be addressed in any mature discussion on disclosure of HIV status. Most people immediately and rightfully so think of sexual partners and their need to know. The CDC and Departments of Health require anonymous reporting so that sexual partners can be tested and

The HIV and HepC mix

published: August, 01, 2013 Categories // Health, International , Sexual Health, Treatment, Living with HIV, Opinion Pieces

Roy Kilpatrick on Hep C infection and HIV co-infection in gay men in the UK.

My heart sank.  I’d just put the phone down. A friend’s routine test results had shown up Hepatitis C. Again. The first time was just two years ago. On top of HIV. Now he has to face it all over again, with the added complication of being on HIV therapy. Despite everything, he wanted to get started on HepC treatment as soon as possible. With new treatment, there was a good chance of clearing the virus. This is probably all too familiar to some readers. Unfortunately. A recent study repo

Digital identify in a high tech world - or what’s SCRUFF got to do with it

published: August, 01, 2013 Written by // Matt Levine Categories // Dating, Gay Men, Lifestyle, Living with HIV, Population Specific , Sex and Sexuality , Matt Levine

Matt Levine on the perils of online dating and why his profile isn’t attracting enough attention. And then there’s Plan B.

Digital identify in a high tech world - or what’s SCRUFF got to do with it

Even though I met a significant other on the long deceased Planetout.com, I’ve never been that committed to online dating.  I’m more of a scratch and sniff, face to face kind of guy.  For a while I was looking for Mr. Right on Match.com and Okcupid, but found my time there was as productive as channel surfing when there is nothing to watch on TV.  Or more precisely channel surfing when the shows you want to watch are on stations that you don’t have access to.   While I spend a bit

Re-evaluating my ability to work

published: July, 31, 2013 Written by // Wayne Bristow - Positive Life Categories // Aging, Finances, Lifestyle, Living with HIV, Wayne Bristow

Wayne Bristow and his thoughts on being on disability. Does he miss work? Could he ever go back again? And how does living on very limited income support affect him? Read on for the answers.

Re-evaluating my ability to work

"Sometimes we receive things in life that we didn’t choose, they chose us. It’s no surprise why my road wasn’t the bumpiest on my journey from being HIV-positive and working to HIV-positive and unable to work." Back in 2003 when I was diagnosed HIV-positive I had been at my job for over 20 years. I was earning nearly $25 per hour and had one hundred percent of my benefits paid. I was told I didn’t need to take medications right away, in fact my doctor said it might be ten years befo

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