After months of preparation and networking with Muluba Habanyama, who is involved on many levels with various projects and organizations and ambassadorship, the HIV Disclosure Project has formed a collaboration with YouthC0 and Canadian Positive People Network (CPPN). CPPN is a national voice for Canadians living with HIV and advocates for people living with HIV. As CPPN is developing a youth caucus, there was an identified need for youth to discuss and develop a workshop and disclosure project as a tool to manage disclosure complexities.
After reading data from several reliable sources for a year and consulting unofficially with youth, we realized there is no concrete tool for youth to address disclosure, particularly to sex partners. From the information read there was a tendency to place all responsibility on youth to disclose, with abstinence a completely unrealistic recommendation.
Youth need to have a safe space to begin a dialogue on disclosure. There is a tool for adults to address disclosure to sex partners and based on feedback there is much education needed and discussion of the realities and facts of living with HIV. Youth need to be supported and Youth Co has been offering peer support to youth living with HIV since 1994. What better organization to partner with as a leader in building awesome communities for and by youth.
Muluba is a member of the youth caucus of CPPN as she coordinates the surveys and analyses information gathered.
To begin this next phase of the project, feedback is being gathered to learn about youth experiences with disclosure of their HIV status. This post from the YouthCO website explains the questionnaire as a method of gathering data in order to develop a disclosure workshop which suits the needs of youth. Please give us your feedback on this survey.
“In order to get this information, we're offering 10 youth living with HIV a $15 honourarium to complete an anonymous online survey. We're asking questions about your experiences with disclosing your HIV status.”
The survey is here.