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Apr27

Top ten

Saturday, 27 April 2013 Categories // Social Media, Arts and Entertainment, As Prevention , Health, Treatment, Living with HIV, Bob Leahy

From PrEP to porn. Bob Leahy looks at PositiveLite.com’s ten most popular posts in the last six months. How many of these did you miss?

Top ten

Most websites have, pardon the expression, a back end which can analyze traffic and PositiveLite.com is no exception. So it's easy for us too see what collectively you like to read.

That latter point is endlessly fascinating – at least to us – and is the subject of today’s post.  Your top ten most popular posts, based on traffic in the last six months, are a mix of the serious and the not so serious, the old and the new. I think you’ll be entertained by revisiting all ten of them.

1. Len Tooley on PreP, part one.

This was the first in an excellent three-part interview by publisher John McCullagh that featured HIV-negative prevention educator Len Tooley’s decision to regularly take anti-HIV drug Truvada as a risk reduction strategy.  This very human interview is both a great read and a primer in the pros and cons of taking PreP that answers many of the practical and emotional questions people have about it. No surprise that the article was picked up by outside news sources and translated in to several languages.

2. I’m on antivirals and undetectable. What about Safe Sex? 

Given that this article speaks to one of THE big issues of the day for many HIVers, it’s no surprise that this interview with researcher Rupert  Kaul on the impact of undetectable viral load has drawn so much attention.  Read it carefully and you’ll be ahead of the pack in understanding things like how risky is sex without condoms and what are the chances of finding dangerous levels of virus in the semen when your blood viral load is undetectable.

3. More homoerotic ads 

Readers find posts in different ways. This older one has clearly been a perennial favourite with people googling “prison shower scene video” obviously the main attraction here.  And why not – it's clever, funny and hot.  We like it because it shows our readership is not too HIV obsessed and has a sense of humour too.

4. My relationship status

Former PosiitiveLite.com writer Michael Burtch returned for this guest post and – boy – did he cause a stir! A blisteringly honest post about what he as a poz guy wants out of sex and the need for real intimacy, it divided readership down the middle. Love it or hate it, and many people did (calling Michael “psychotic” and “criminal”), this is a must read for those trying to understand the impact of undetectable viral load in the real world. 

5. Roberto Alomar – is he still playing games? 

Clearly another google hit, this almost three year old post drawing on rumours of the day just won’t go away. Who knows  - or even cares anymore - if now retired baseball player Roberto Alomar is poz? But the news continues to bubble and Alomar continues to claim he is neg, while lawsuits swirl around him contending he’s poz.  The curious can get an update on his legal battles here

6. Changing my mind on treatment as prevention

This quite recent heart-on-sleeve post is another one that has been picked up by several national and international  news source. As the title implies it’s a highly personal take on one of the hottest HIV issues of the day.  Perhaps why it has appealed to many though, and likely annoyed many others, is its point-by-point dissection of the various arguments against treatment as prevention and why they no longer, at least in the writer’s eyes,  look so good. Controversial stuff, this!

7. Neuropathy and HIV – a progress report

When we signed up Netherlands poz guy Dave R to write for us last year, we landed a gem. The always readable Dave serves up regular helpings of his well researched thoughts on  - well, just about anything.  But his area of true expertise is peripheral neuropathy, of which he knows well first hand.  One of the world’s leading experts on this topic, he’s highly readable to boot and this post is no exception.

8. Sex = fun? Explicit pro-pleasure videos bring "sexy back" to HIV awareness

This article came to us from a content-sharing agreement we have with TheBody.com.  It’s a fascinating look at some HIV prevention videos which go one step further than most (or maybe three). But it’s likely the words “explicit sex videos” in the title didn’t hurt in drawing in the googlers.

9. Bisexuality on the Big Bang Theory

I must admit I’ve never looked at this show in the same way since reading this post from Guelph’s Megan DePutter on ultimate nerd gal Amy’s  sexual and entirely unreturned attraction to Penny. There are few if any other bisexual characters on TV and the fact that this is played out on prime time so blatantly warms our hearts.  Plus of course, the show is hilarious. Thanks, Megan, for this.

10. Len Tooley on PrEp, part three

See 1. Above. Readers clearly coudn’t get enough of Len’s wonderfully honesty and insightful words. If you haven't read this, or parts one and two, you are missing out on being up to speed on perhaps the next big thing in HIV prevention. And understanding how people can make a difference to our perceptions by sharing their stories. 

Apr22

Cancellation

Monday, 22 April 2013 Written by // Christopher Banks Categories // Social Media, Gay Men, Opinion Pieces, Population Specific , Christopher Banks

Sad news. This is the last blog entry from Christopher Banks. Here Christopher explains why.

Cancellation

Remember that time you went to that awesome restaurant, ordered a fantastic meal, everyone enjoyed it, then you realised at the end you didn’t have the money for to pay for it?  No? 

OK, how about that great drive up the coast you always wanted to do? The people you met, the things you saw, everything was awesome – but you ran out of petrol three-quarters of the way there. Had that happen?

These are metaphors, of course.  I like using them, as well as satire, which often leaves readers dazed, confused, and thinking I’m a wanker.  I also stray off the point from time to time.

So here it is:

This will be the last Bipolar Bear blog entry. I don’t know if I will start up again at this stage. Some of my reasons will be clear by better explanation of the metaphors above.

Firstly, my grandmother is dying. This is the second close family member to go in under a year and, as I alluded to yesterday, it’s time to focus on the things that matter.

Second, there isn’t enough of me to go around. Much as I get a great deal out of writing and interacting with you all through this medium, I’m starting to get tired – literally. I often sleep through entire weekends. Other things, besides family, are demanding my attention in a way I can no longer ignore.

This blog began as a part of my work at the Mental Health Foundation in New Zealand. Indeed it was publicly supported as such. A year later, there was debate within the organisation as to whether a blog dedicated to gay men’s mental health and wellbeing fitted with the Foundation’s work.  Similar debates were had around the project that was to become my documentary, “Men Like Us”.

I left the organisation and funded the completion of “Men Like Us” personally – this is nothing new to me, all but one of my films have been paid for out of my own pocket.  The result was better than I could have imagined – apart from the high-profile and excellent blockbuster doco “Untouchable Girls” – it’s the only gay-themed documentary from New Zealand to ever be released in cinemas, and receive glowing reviews from critics and viewers alike. That’s a testament to the power of the nine men’s stories contained within it.

While I continue to believe there is immense social value in films by and about gay men, there is not a great deal of financial value in them in terms of profit.

The cost of completing “Men Like Us”, supporting it through a theatrical release in New Zealand and getting it onto television, and subsequently onto DVD and download are still being recouped.

I have also incurred considerable debt underwriting the productions made by my charitable film-making trust, Number 8 Films, which my co-trustee Andy Jalfon described in Express recently as coming to a natural end.

This is broadly true, in the sense that if you sprint non-stop for fifty kilometres, things will come to a natural end when you collapse on the pavement gasping for breath and needing to be defibrillated.

I’m really proud to have instigated monthly gay film nights in Auckland, which ran at a loss for several months until we convinced a couple of key sponsors to come on board – Get It On and the GABA Charitable Trust. This support was great, as the events could not have been run without it. Cinema hire, film hire and censorship is an expensive business for a niche audience, as anyone who runs a gay film festival will tell you.

The administration of these events, including negotiation with distributors, putting films through the New Zealand censorship process, writing promo copy for media, liaising with the cinema over ticketing and promotion, is time-consuming as well. I continued to do all of this until the film nights ended in February of this year, despite the fact I’ve been living in Australia since August.

So, to quote David Bowie’s fantastic comeback single, where are we now?

We are tired, and we are in debt. We meaning me. I need to recharge my energy and my finances. I need to focus on my family. I need to find new ways of working and expressing myself creatively after being worn down by more than a decade of being surrounded by “no” people; be it “no you can’t do that”, “no we won’t support that”, or “no I haven’t got time to help you”.

I’d like to thank each and every person out there that has enjoyed the writings, the films, the events, have been moved by them, shared them with friends, bought DVDs – all those forms of support which have made it worthwhile to keep going through the tougher periods.

But for now, it’s time to shut the door on the vault and say “game over”.

Then place people I don’t like in a series of elaborate traps in which they’re hacked into Findus lasagne pieces (just kidding).

I trust you will understand.

This article first appeared on Christopher’s own blog here 

Apr12

The wild birds win BUT . .

Friday, 12 April 2013 Written by // Megan DePutter - Life Categories // Community Events, Social Media, Current Affairs, Megan DePutter

Megan DePutter isn’t angry. In fact she’s delighted that AIDS Committee of Guelph’s close second place finish in the Canada’s Worst Charity Website contest netted her agency a $15,000 website makeover..

The wild birds win BUT . .

The short answer is, we didn’t win. But that’s misleading. There is so much more to the story.

On Friday April 5, as I whipped into the parking lot and dashed into the office, my heart was beating. It was our last chance to get the final votes.  I hadn’t slept much the night before, and thanks to a persistent cold, my throat was raw and I could barely speak.  I lit up my computer to send out last minute pleas for help through email, Facebook and Twitter, reminding anyone who cared (and probably some who did not) that we had only hours – and then minutes – left to win Canada’s Worst Charity Website.

I have been told that many of our supporters anxiously refreshed their browsers over and over again, waiting to see the final tally. What they didn’t know is that the company who hosted the contest, rTraction, was monitoring votes and would strip the final numbers of any that looked illegitimate.  We wouldn’t know the final tally until an hour later.

Both myself and Wayne have written previous posts on why this contest is important to us. We want to make our HIV prevention and support services more accessible online.  We do this work within the confines of certain barriers – including the fact that stigma, isolation (both social and geographical) make face-to-face conversations about HIV, AIDS and STIs difficult. For many hard-to-reach populations, including those who live in rural areas and those who fear stigma, discrimination or racism, a website is often a primary access point to information. For us, this was about bridging barriers.

Shortly after 1:00, our Executive Director, Tom, went into his office to answer the telephone and I knew right away the news wasn’t good.  From his office, he gave me a thumbs down.

I didn’t understand then, why he sounded so chipper. “We’re thrilled,” I heard him say a few minutes later.

When Tom gathered all the staff together for an announcement, he told us what I already suspected – we didn’t win first place. But rTraction had been so impressed with our enthusiasm and hard work, they decided to offer us a second prize that was nearly as great – a website makeover worth $15,000!

We are truly thrilled to accept this prize. The development will take place in 2014. I really look forward to having a user-friendly, responsive, and professional website.

Beyond that though, this process has been really enlightening. It’s been incredibly moving to see the kind of community involvement we’ve received. I say involvement, because it’s gone beyond the simple act of voting. Our supporters took a major role promoting the contest by sharing, tweeting, emailing, blogging, Facebooking – and plain old talking about the contest.  They designed memes. They gave free advice. One physicist friend actually wrote a computer program to help monitor and analyze the voting trends. And this support wasn’t only found in the Guelph community (although the Guelph community has been a huge source of support – including voluntary associations, social services and nonprofit organizations, the university, the Mayor and countless other organizations and individuals).  The support and involvement extended across the region, the province, the nation – even the globe! Friends spread the word in multiple languages.

We utilized social media as well as traditional media. We worked hard to get the HIV & AIDS community involved as much as possible, asking for help from as many HIV/AIDS affiliated organizations across Canada (and into the United States and beyond) to help us – and that included the fabulous PositiveLite.com blogging community!

The really cool thing is when you start to see your voters become promoters. That especially took off as our supporters learned why this contest was so important. It wasn’t just about getting a great website so that we could solicit donations. It was about making sure that life-saving information was available to people as they need it. It was about overcoming significant barriers like stigma, shame, isolation and fear.  Supporters began to learn more about us and the issues we faced, and they started to share this information with their own networks.

Here’s an example.  I saw an acquaintance – who has no affiliation with the AIDS Committee - post this on Facebook when encouraging her friends to vote:

Not only is the AIDS Committee of Guelph an organization deserving of and in need of a new website, but the nature of their work means that having a well designed site that's easy to use is extremely important as social stigma, fear and a host of other issues might mean it's their first (or only) point of contact with some individuals needing their services.

It is inspiring to see how our messages have circulated through social media, prompting individuals outside our circles to learn, share and talk about HIV.  It seems this contest has helped us raise awareness of who we are, what we do, and most importantly, the issues that we work to address every day.

More than 15,000 votes were sent in favour of the AIDS Committee of Guelph. I’m told it was a very close call – that we lost only by a hundred or so.  I also recently learned that our total was more than double the amount of the winning organization from last year.  The fact that we came so close to winning while competing against an organization based in Ottawa – a city that dwarfs Guelph in size and political power – is incredibly inspiring.  It is a testament to how much our supporters care for this agency and its cause. It also speaks to how the HIV & AIDS sector works as a family. 

With this contest we have heightened our local and global response to HIV and AIDS – and that has truly been our most important goal, regardless of winning or losing this contest.

On behalf of the staff and Board of Directors at the AIDS Committee, I would like to express their heartfelt thanks for everyone who voted and promoted the contest.  A special thank you also to rTraction, from London Ontario, for hosting Canada’s Worst Charity Website contest and congratulations to the Wild Bird Care Centre of Nepean Ontario on their win.

Apr09

Newly living With HIV, Josh Robbins Is "Still Josh" -- and still an advocate: part one

Tuesday, 09 April 2013 Written by // Guest Authors - Revolving Door Categories // Social Media, Activism, Gay Men, Youth, Newly Diagnosed, Living with HIV, Population Specific , Revolving Door, Guest Authors

The first part of an interview with young AIDS activist Josh Robbins who famously captured receiving his positive tests results on a tape published on YouTube.

Newly living With HIV, Josh Robbins Is

This article from This Positive Life by Warren Tong first appeared on TheBody.com here. 

Josh Robbins was already an HIV advocate in Nashville, Tenn., when he was himself diagnosed with HIV in January 2012. He'd supported local HIV organizations' events as a small-business owner, and was even part of an HIV vaccine study. Then a brief unprotected sexual encounter put him on the other side of his advocacy activities. "I needed some of those services that Nashville CARES has provided, that I have supported for years but never thought I would use," Josh recalls. Because he was in a vaccine study beforehand, he's been in HIV care practically since the day he became positive -- and he's been open about his HIV status for almost as long, even videotaping his diagnosis appointment for YouTube. "I don't think that what I'm doing, or what I've done and what I'll continue to do, is brave," he says; "But if it helps one person or two people here feel like they're OK, then that's enough." In this interview, Josh opens up about disclosure, stigma, growing up gay in the U.S. South -- and befriending the man from whom he acquired HIV.

***************** 

Josh, welcome to This Positive Life.

Well, thank you. I've been looking forward to it.

Can you start by describing how you found out you were HIV positive?

Yeah, absolutely. I had unprotected sex on December 18, 2011. We started with a condom and then the condom came off. I really didn't think that we were going to really continue, or go back into anal intercourse. And then things got hot and heavy again. So we had unprotected sex for about five minutes. And that's not a stretch. I mean, it was really just, like, five minutes.

He didn't get off, actually. There was a knock on my door, so we had to end it quickly. One of my really good friends stopped by and needed to talk. He had some things going on. And so it was kind of an end-it-and-that's-it. So that was on December the 18th.

I really didn't honestly think a whole lot about it.

And then on Jan. 2, 2012, I started getting really sick, kind of like the flu-like symptoms that they talk about. I had a fever, chills, just didn't feel good. I really just thought I had the flu. So the next day on the 3rd I went to one of those doctor-in-the-box type things, one of those urgent cares. They thought that I just had some kind of flu-like thing going on. They didn't know what it was; they just gave me some cough medicine for my throat, because my throat was really hurting.

I came home. Still felt terrible. And the next morning I woke up and had, like, 30 sores in my mouth. Again, I wasn't thinking about HIV at all. I kind of got mad, and I called my mom and my sister. And my mom and sister both worked at hospitals, my mom as an RN. They immediately thought that I obviously just had an allergic reaction to whatever the medicine was.

I went back to the doctor two days after that. The doctor came in and looked at everything, and reviewed his notes. He left the room and he came back in with a nurse and he said, "We need to talk about your high-risk behavior." And it kind of hit me right then. In my gut, I knew that it was HIV.

They wanted to test me there but they couldn't, because I'd been involved in an HIV vaccine study here in Nashville. I was very active in our community, as far as talking about prevention. But I was still kind of oblivious to it. I told them that I couldn't get tested at that office, which they didn't take too kindly to, because they really wanted to test me for that.

I had to call the HIV vaccine program because I was a volunteer and I could only be tested there. I had to go in. And then, from going in to the vaccine study program, till I finally got the results, which was January 24, that was like three weeks or so. So I actually found out from the medical professionals at the hospital that I'd been doing the vaccine trial with.

It sounds like you were practicing safer sex that entire time, and this was a slip-up.

Yeah, I think that it was. I mean, there had been other times that I trusted someone, or asked them their status, and I knew them. What I'd been really focused on in 2011, specifically because of the vaccine program, was not allowing my trust in someone and me judging their character to be the factor of whether I wanted to have protected or unprotected sex with them. That was something that I was working on in 2011. And so with him, it was a slip-up.

How old were you at the time?

Well, my birthday was January 12, so in the middle of feeling sick and doing my first test, and then my second test, and then my third test with my vaccine program, my birthday was dead in the center. So I was 28 at first and then halfway through that three-week process I had my 29th birthday.

You filmed yourself getting the test; is that right?

Yeah. That week after I came back from the doctor-in-a-box that said I was showing symptoms of acute HIV syndrome -- it was on a Friday -- I couldn't get into the vaccine program to meet with them until Monday. So I was sick, not feeling good, and on top of that, I knew in my gut that I had contracted HIV. 

During that two-and-a-half to three-week process of me finally getting what the final result was of this test, I started writing and videoing just little things, how I felt at the moment. The reason why I did that was because I didn't want to forget it. I didn't want to forget how I felt. In the unlikely case that I got out lucky, and it was just the flu, or something, I wanted to remember what I felt like then, and how everything kind of flashed before me.

When I went in on the 24th, when I got my final result of being positive, I did video. And then when I went in the actual room, I just audio-recorded it. And the reason why I did that was simply because I didn't want to forget what they said. If it was a positive result, number one: At that time I didn't know one person that had ever told me that they were HIV positive. Number two: I also knew that as soon as they said that I was HIV positive that I would forget anything else they said. And so I did it for that purpose -- so that I could listen back to what they said; but also because I wanted to hear those words again.

A couple weeks after I got that result and I hadn't really told anybody, then I went back and listened. And I heard how powerful it was from an outsider's perspective. So I decided to put it online in a little short video clip on YouTube. (see below)

When they told you that you were positive, what did you think, and how did you feel?

The staff and the medical professionals at the Vanderbilt HIV vaccine study are so caring and so honest and gracious. One of the guys that's kind of over the program that I'm in was prepping me; and we really had an open dialogue. I told him that my gut said that I had been infected. During that three-week process, he started going down the road of, well, what does this mean? He started talking to me about viral loads and CD4 counts. Then I started doing a lot of research, because I had no idea what he was talking about.

When I walked in on the 24th to get the results . . . again, I knew in my gut what the result would be. What I was surprised about was the viral load. I don't know. For some reason, in my mind, 175,000 is what I expected. Now that I know what I know, it's just funny that I even thought that. But 175,000 was what I expected. So when he said that I had a positive viral load, he followed that sentence up with that my viral load was at 5.5 million. That was a shock for me. It was a real big shock.

What was the first thing that you did to help you come to terms with your diagnosis?

I had already made a decision. I'm really close with my family. I have a mom, a stepdad, my father, and my stepmom. And then I have a sister and two stepbrothers. But I've known them my whole life and so they're like my brothers. My family as a whole has been through a lot in the past couple years. My dad had a seizure, almost died. My sister had carbon monoxide poisoning on a trip. She almost died. One of my stepbrothers had a motorcycle accident, and he died twice; and they brought him back to life. And my mom has MS [multiple sclerosis]. With all that's happened with my family, we've gotten really close. We've always told each other that if there was ever any kind of news or anything that we needed to tell each other, that we would do it immediately, and that we wouldn't hold the information.

Before I went to get my results, I purchased a plane ticket to go home that night. I knew that if it was positive, then I don't know that I would have gone and bought a ticket. I would have been scared, and that sort of thing. So I kind of just started my day and then, you know, bought a ticket; then went and got my results; then came home and got my bags; and then I went to the airport. I immediately flew home.

And so the day that I found out, I told my mom and my stepdad. My sister picked me up from the airport. And then I drove down and woke my dad and stepmom up -- they were asleep -- and shared the news with them, as well. So immediately, within 24 hours, I had a support group, which was my family, the people that I'm the closest with.

The next day, I flew back home in the morning; and I went to work the next day. Probably the hardest call, on top of telling my family, is that I knew that -- because I was negative via a blood test on November 30, 2011; then I had unprotected sex December 18, and then I was sick January 2, 2012 -- so I knew timeline-wise exactly who the person was. And I knew that they didn't know that they were positive. And so that was a very difficult call. But I did that call within 24 hours of finding out, too. Because I wanted to get it out of the way.

What was that conversation like?

It was a difficult conversation. First, I texted him to see where he was and if he could chat. To be completely transparent, it wasn't somebody that I was extremely good friends with. It was someone that I had a bunch of drinks with -- it was a one-night stand kind of thing. I was just glad that I had his phone number, to be honest. This may make me sound terrible, but that is being real.

So I texted him and said, "I need to chat with you. Call me." And he called me immediately and said, "What's going on?"

I said that I'd just found out that I was HIV positive and, based on my timeline, that I really, really, really strongly encouraged him to go get tested. And he actually put the words in my mouth. He said, "Because I'm the only one that you could have gotten it from?"

And I said, "Yeah."

There was a pause there. He didn't really even know where to go. So I helped him and got him in touch with the people at Nashville CARES to test him. I introduced him to those people and then, when he found out that he was positive, helped him know what to do next, where to turn and that sort of thing. He was going through the process of meeting with people, trying to find a doctor and that sort of thing; it was a process that I just went through a couple weeks before him, so I was able to kind of lead him in that direction.

We are friends now, and we chat all the time. He is not open at all about his status, which is completely his choice. And I've honored that. And so I haven't disclosed who he is to anyone, either. [Editor's note: The man who exposed Josh to HIV, who is now a friend, wrote a blog entry about getting the call from Josh that led to his own diagnosis -- read this story from his perspective.]

It's still very gracious of you to help him. It sounds like there was no resentment at all on your part.

The day that I made the call to him, it was because I asked one of my friends, Vic, who works with Nashville CARES: "What do I have to do now? Do I have to call that person, or will the Health Department just call him?" For me that was like an easy out. I'll just let them do it.

And Vic said to me, "Yeah, they will. However, that takes a lot of time. And if he doesn't know that he's positive right now and he has unprotected sex or any risky behavior during that time, are you going to be OK knowing that that could be happening?" And that's the reason why I made the immediate call: Because I hadn't infected anyone and I know that he didn't intentionally infect me. But I wanted him not to put anyone else at risk, without knowing his status and that sort of thing.

And I'm glad I did, you know? It wasn't until the last week of May 2012 that the Health Department here in Nashville finally called me. They asked who I had sex with, or whatever. But it took them four months to call. So if I hadn't made that call to him immediately then he would just now be finding out. And if his viral load was high, you know -- I didn't know at the time -- or his CD4 count was really low, not only did I want him to know so that he wouldn't expose anyone else, but I wanted him to get to a doctor so that he would be better equipped to be successful against this disease long-term.

And so, as a whole, I told my family and a couple of my best friends, and the person that I had unprotected sex with. I made all those calls immediately.

Everyone's different. Obviously, now, because I have a blog, imstilljosh.com, and I was on the cover of one of the national publications here, telling my story, I'm very open about it now. But I also understand that that is not for everybody. I'm in a position and a place in my life where I could be open, and I wanted to. But there are other people that are HIV positive and maybe only their doctor knows. And that's OK.  

It definitely takes time for a lot of other people. It sounds like you were ready to open up immediately.

Yeah, it was pretty immediate. I'm somebody that finds humor in weird things, you know? Sometimes when I go to funerals, the whole thought of somebody being passed away, and laying in a casket, and people walking by . . . I guess I'm just weird, but I kind of find humor in different things like that -- or I can see humor in it.

So I was sitting in my house and was thinking, how in the world am I going to tell everyone? Or, what happens if they find out before I tell them? Or, if I told a couple people and then everyone else kind of starts trickling to find out? Again, I still didn't know anyone that had ever told me that they were HIV positive.

So I did a test thing on my Facebook and social media. I don't even know why I did it -- but I posted an Elton John song, Philadelphia Freedom. Because the only thing that I put with HIV was Magic Johnson and the movie Philadelphia. And so for some reason there was like a little comfort in there, a little humor; I don't know.

And then a couple days after I did that, I decided to make a blog and tell my story. Because Nashville's a city, but it also feels very small at times. And in the gay community, everyone knows everyone. I wanted to be in control of that dialogue, and my story. So I created a blog on Thursday morning. And that Thursday, at 4 p.m., the best way that I knew to let everyone know is, I just posted the blog address on my Facebook. That first day, you know, I think I had like 600 friends or something; the blog was viewed almost 1,300 times. So the secret got out real quick.

From there, the gay publication in Nashville asked me if they could tell my story, or write about it. And I said, "Absolutely." Where I am now, it's twofold: Number one, it's to raise awareness; it's for people like me that have found out, that they're HIV positive, and they felt alone. They didn't know anyone. It's not something that anyone seems to ever talk about -- or did, at that moment, to me. Number two, I'm trying to tackle the stigma of HIV, that it's not a death sentence, obviously, as we all know. But in the South, particularly, there's still a very strong stigma around it.

So I wanted to stand up and yell in town that I had HIV, that I'm OK, that I'm going to survive, and that I'm still Josh. Kind of the motto behind my little blog is: I'm still Josh; you still be you. As long as you still do you guys, then I'm still going to be me. And we just have this disease now that I'm just dealing with.

To be continued . . . 

Find Josh Robbins on Social Media 

Facebook

Twitter

YouTube

Check out Josh's blog at imstilljosh.com! 

Mar30

Behind the scenes of the video series “A Day in the Life”

Saturday, 30 March 2013 Written by // Mark S. King - My Fabulous Disease Categories // Social Media, Living with HIV, Media, Opinion Pieces, Mark S. King

Mark S. King and his TheBody.com profiles of a salsa dancing couple, a body builder, a drug addict who survived the streets and more inspiring people living with HIV.

Behind the scenes of the video series “A Day in the Life”

I have some amazing friends for you to meet. 

Beginning two years ago, TheBody.com asked me to produce a series of videos (“A Day in the Life: Keeping Up With Your HIV Meds”) that would profile a person living with HIV, what their day looks like, and how their medication regimen fits into their daily routine. It was a great opportunity to highlight the everyday lives of people living with HIV, but also to let their spirit and passions come through, and show we are whole people — not simply the virus.

The profile subjects came from all walks of life, in various cities around the United States, and their personalities and interests — their families, their hobbies, and even how they became HIV positive — were all I needed for inspiration.

Below are the eleven videos that have been produced to date for the series (an ongoing feature on TheBody.com). They are each less than ten minutes long; just scroll through them below and find a story that sounds like yours — or better yet, hear what the journey of someone completely different from you is like! Are you ready?

Episode 1: Damaries Cruz

Damaries is from South Florida and could not have been more lovely; we laughed a lot during our day together. Her strength is what impressed me most: she did not come to the decision to start HIV medications lightly. She really did her research before she began a regimen. Filming her story was also a great excuse to hit the beach, since she loves to find her peace and tranquility on that gorgeous sand.

Click here to read the rest of Mark’s article from his blog, My Fabulous Disease.

Mar23

Vote for Canada’s worst charity website

Saturday, 23 March 2013 Written by // Megan DePutter - Life Categories // Social Media, Fundraisers, Events, Media, Megan DePutter

Megan DePutter’s AIDS Committee of Guelph and Wellington County is competing for the tongue in cheek title which can mean $20,000 to the winner – or is that loser? In any event, find out how you can help.

Vote for Canada’s worst charity website

The AIDS Committee of Guelph & Wellington County is currently entered in a contest to win Canada’s Worst Charity Website. It’s a self-deprecating title for sure but one that we’re more than willing to accept. Why? Because this is a contest that awards the winner with a $20,000 website makeover.

One of the reasons we’re so eager to win this opportunity is because we know how important a good website is to the population we serve. A lot of people access health information online. Especially information about HIV. Let’s face it, it takes a lot of courage to have a frank, open discussion about sex – and especially about HIV, STIs and unprotected sex. This is even more so considering how many different types of sex are stigmatized or considered socially deviant thanks to homophobia, sexism, and, in my opinion, narrow definitions of what is considered to be normal, healthy, sexual behaviour. Our sexual practices are a lot more diverse that we openly admit, but that doesn’t mean that people don’t need access to information about risk and HIV. 

We also know that more and more people are accessing websites through their phone or mobile devices. This is one of the reasons we created the iPhone app. We want to help people get the information they need when they want it, how they want it. To us, this is part of meeting people where they’re at, and part of being accessible. Getting access to information on a mobile device can be really useful, for instance, if you are in the middle of sexual decision making, negotiating safer sex, or trying to determine where to get tested. Mobile devices are really helpful because they are just that – mobile. We’d love to have a website that is friendly to mobile devices.

Our funds go where they are intended and where they are most deserving – to programming for people living with, affected by, and at risk to HIV & AIDS. We simply don’t have the funds to spend on web design, something that could be considered an “overhead” cost. But at the same time, we really believe that a great website would have an important educational benefit, and we’ve been excited about the prospect of being able to make it happen.

Our biggest competition right now seems to be the Ferret Aid Society and the Wild Bird Care Centre. Please vote for us! You can vote once a day, every day until April 5 at www.worstcharitywebsite.ca. Just head to the website and then click “vote” under ACG. Thank you for your help!

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