Newly Diagnosed

I have just found out I am HIV-positive: what do I do now?

published: January, 09, 2018 Written by // Guest Authors - Revolving Door Categories // Social Media, As Prevention , Gay Men, Treatment Guidelines -including when to start, Newly Diagnosed, Sexual Health, Health, Revolving Door, Treatment, Guest Authors, Living with HIV, Media

From the UK, guest author Ant Babajee asks: "What would I tell my newly diagnosed self if I knew on 2 January 2007 what I know now?"

I have just found out I am HIV-positive: what do I do now?

I have been living with HIV for more than 10 years — you might say I am a bit of an HIV old-timer. As I have just celebrated another year living with HIV, I thought it was a good time to put together some pointers for people who have recently got their news. What would I tell my newly diagnosed self if I knew on 2 January 2007 what I know now? The first thing I want to say is: DON’T PANIC! Since my diagnosis in 2007, so much has changed in terms of our knowledge about how to preve

When HIV is not your only battle

published: January, 08, 2018 Written by // Félix Garmendía Categories // Social Media, Aging, Gay Men, Newly Diagnosed, International , Living with HIV, Opinion Pieces, Félix Garmendía

New York guy Félix Garmendía: "I will not let fear stop me again from living my life."

When HIV is not your only battle

I wonder if I will finish this piece. Have you ever wondered when you are sad, if writing about it will help you find peace? I have, and it has been my experience that spending the time, effort and contemplation to express these feelings definitely helps. I’m not unfamiliar with sadness. Like every person with a chronic illness, I have my long dark nights when I feel like I’m wandering around, lost, in the dark. I am bipolar, so sadness can be a bit difficult to battle. Like I have ment

Being on the same page – and scrapping paternalism!

published: November, 20, 2017 Written by // Bob Leahy - Publisher Categories // African, Caribbean and Black, Activism, Social Media, Gay Men, As Prevention , Youth, General Health, Current Affairs, Treatment Guidelines -including when to start, Mental Health, Newly Diagnosed, Women, Health, Sexual Health, Treatment, Media, Opinion Pieces, Bob Leahy - Publisher

Bob Leahy on the confluence of voices that is saying paternalism towards people living with HIV doesn’t serve us well – and asks how we challenge it

Being on the same page – and scrapping paternalism!

The issue of paternalism – agencies who think or assume they are working in the best interests of their clients and make decisions for them – is in the news this week A word about us: PositiveLite.com has always been a bit of an “alt-left” voice when it comes to HIV. We don’t rely for our continued existence on government funders so that gives us a bit more freedom to report on what we – and often others - are feeling. So what’s the mood? Big Picture? The mood is of optimism,

After I was diagnosed with HIV I started taking risks

published: October, 30, 2017 Written by // Guest Authors - Revolving Door Categories // Dating, Social Media, As Prevention , Gay Men, Newly Diagnosed, Treatment Guidelines -including when to start, Mental Health, Health, Revolving Door, Treatment, Lifestyle, Guest Authors, Living with HIV, Media, Sex and Sexuality

From FS Magazine, Ruaidhri O'Baoill tells of "a time when I should have protected myself more than ever but instead put myself through continuous sexual risk" and how he found his way forward.

After I was diagnosed with HIV I started taking risks

When I was diagnosed as HIV-positive I turned to sex as a way to cope with how I was feeling about myself. I lost all confidence and self-condemned myself to the ‘unwanted’ pile. I relied on the quick fix that sex brought to make myself feel better again.  It was the connection, contact and ultimately acceptance, along with being desired, that I craved which sex provided me with – no matter the circumstance.  I didn’t set out to intentionally put myself at risk again after being d

Trump government and Big Pharma threaten access to HIV medications with new NAFTA deal.

published: September, 11, 2017 Written by // Guest Authors - Revolving Door Categories // Activism, Social Media, African, Caribbean and Black, Gay Men, As Prevention , General Health, Current Affairs, Youth, Newly Diagnosed, Treatment Guidelines -including when to start, Women, Research, Upcoming Events, Health, Revolving Door, International , Treatment, Guest Authors, Media

If you live in North America, tell your representative: Commit to vote no on NAFTA corporate power grab!

Trump government and Big Pharma threaten access to HIV medications with new NAFTA deal.

September 8, 2017 The re-negotiation of the North American Free Trade Agreement (NAFTA) is now underway. As these critical discussions continue, the Government of Canada needs to counter the attempts by the Trump administration to ratchet up further the restrictive rules on intellectual property that create even more monopoly profits for Big Pharma at the expense of people who need affordable medicines. The Ottawa Citizen recently published our analysis and recommendations to the federal g

Trump doesn't care about HIV. We're outta here.

published: June, 20, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, African, Caribbean and Black, As Prevention , Gay Men, General Health, Current Affairs, Youth, Newly Diagnosed, Treatment Guidelines -including when to start, Mental Health, Women, Health, Revolving Door, International , Treatment, Legal, Guest Authors, Living with HIV, Media, Opinion Pieces

Six members of the Presidential Advisory Council on HIV/AIDS (PACHA) have resigned. From Newsweek, Scott A. Schoettes has this report.

Trump doesn't care about HIV. We're outta here.

To read the complete article by Scott A. Schoettes, visit Newsweek, here. Five of my colleagues and I resigned this week from the Presidential Advisory Council on HIV/AIDS (PACHA). As advocates for people living with HIV, we have dedicated our lives to combating this disease and no longer feel we can do so effectively within the confines of an advisory body to a president who simply does not care. The Trump Administration has no strategy to address the on-going HIV/AIDS epidemic, seeks z

Chatty CATIE: What is the one thing you wish you had known when you were first diagnosed with HIV?

published: June, 15, 2017 Written by // CATIE - HIV and Hep C Info Resource Categories // Social Media, As Prevention , General Health, Newly Diagnosed, Treatment Guidelines -including when to start, Mental Health, Features and Interviews, CATIE - HIV and Hep C Info Resource, Health, Treatment, Living with HIV, Media, Opinion Pieces

And, what advice would you have for someone newly diagnosed? For CATIE, RonniLyn Pustil interviews two people living with HIV.

Chatty CATIE: What is the one thing you wish you had known when you were first diagnosed with HIV?

BRITTANY CAMERON, 31 Peterborough, Ontario People living with HIV engagement worker, PARN Diagnosed with HIV: 2006, at 36 weeks pregnant I wish I had known that it would be OK. That I wasn’t the first HIV-positive woman to give birth, and I wouldn’t be the last. That HIV-positive women can and do have HIV-negative babies. That one day, advocating for women with HIV to have babies would become a passion of mine and I would inspire other positive women to have babies of their own. I

The first SENIOR intergenerational LGBTQ Toronto Pride event!

published: May, 26, 2017 Written by // Guest Authors - Revolving Door Categories // Community Events, Social Media, African, Caribbean and Black, Gay Men, Youth, Newly Diagnosed, Events, Women, Upcoming Events, Revolving Door, Guest Authors, Living with HIV, Media, Population Specific

All welcome -- come out and mingle, socialize, chat, have fun, share your stories!

The first SENIOR intergenerational LGBTQ Toronto Pride event!

 SAVE THE DATE - Sunday June 4, 2017 The Senior Pride Network Presents In Partnership with The 519 and The Buddies Youth/Elders Project  The First SENIOR Intergenerational LGBTQ Toronto Pride Event!  Date: Sunday June 4, 2017 Time: 5 pm - 8 pm Location: The 519 Community Centre (519 Church St.) Entertainment: DJ's and dancing Free, but donations to the Senior Pride Network are welcome!  PERFORMANCES, PRIZES, HENNA ARTIST AND MUCH MORE! Physically accessible/scent free/substan

Iris's story: "I thought the doctor must be mistaken"

published: April, 19, 2017 Written by // Guest Authors - Revolving Door Categories // Newly Diagnosed, Women, Health, Guest Authors, Living with HIV, Opinion Pieces, Population Specific

Finding out late in life you are HIV-positive can be a shock. Here is how Guelph, Ontario’s iris Budd handled it with the help of her local AIDS Service Organization

Iris's story:

Back in 2005 I ended up in the hospital, deathly ill. The doctor first thought that I had a brain tumor (cancer). I had been in a coma for 2 weeks and when I came out of it, I couldn’t use my left side, as it was paralyzed. The doctor diagnosed me and summoned my children to the hospital, because he said, your mother probably won’t live. They said they had to perform a brain biopsy, so they shaved a triangle out of my hair and drilled a hole in my scalp to take a small part of my brain.

How I managed to overcome stigmatization.

published: April, 17, 2017 Written by // Kimutai Kemboi, Categories // African, Caribbean and Black, Activism, Social Media, Kimutai Kemboi, General Health, Mental Health, Newly Diagnosed, International , Living with HIV, Opinion Pieces

Kimutai Kemboi: "The fight against stigma is dynamic.It starts with one's soul, then people close to you and then the entire society."

How I managed to overcome stigmatization.

Stigma refers to a negative, an ill and undermining attitude that a person has towards another. This does not occur naturally neither does it occur at a particular time, it is gradual and develops slowly by slowly. The good thing about is, it is not a permanent thing in that a person can opt out of it. When I tested HIV-positive a year and couple of months ago, this was the situation I was going through. Thank God, I found a way out of it! I came to realize that in any situation, however chal

Investigating late HIV diagnoses as serious incidents may spur change across the health system.

published: April, 05, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, African, Caribbean and Black, As Prevention , General Health, Newly Diagnosed, Treatment Guidelines -including when to start, Research, Health, Revolving Door, International , Treatment, Guest Authors, Media, Opinion Pieces

From AIDSmap, Roger Pebody on a report by public health officials and clinicians on a novel strategy to reduce very late HIV diagnosis in high-prevalence areas.

Investigating late HIV diagnoses as serious incidents may spur change across the health system.

Investigating cases of very late HIV diagnosis through the NHS’ serious incident reporting process allows identification of the reasons for late diagnosis and provides an impetus for initiatives to address them, public health officials and clinicians report in the March issue of the Journal of Public Health. In 2015 in the UK, 39% of adults were diagnosed with HIV infection at a late stage (below 350 CD4 cells/mm3) and 21% at a very late stage (below 200 CD4 cells/mm3). Late diagnosis of

Seeking decompression

published: April, 04, 2017 Written by // Dennis Battler Categories // Social Media, Aging, Gay Men, Mental Health, Newly Diagnosed, Health, Dennis Battler, Living with HIV, Opinion Pieces

Dennis Battler: "My efforts in the gay community, in the self-development community and in the spiritual community occurred in a context of self-sacrifice, martyrdom and self-denial, foundational tenets of Christendom. Not this time."

Seeking decompression

Of the four options offered by online dictionary defining the word decompression, I choose #4, “• a surgical procedure that relieves excessive pressure on an internal part of the body such as the cranium or spinal cord.” The innate desire to fit in, to be accepted, welcomed and wanted remains a desire present in every person to varying degrees if we were to be honest. It is the main stay of psychoanalysis, religion, sociology, government, society, education, sports entertainment and th

If you just found out you are HIV-positive...

published: March, 16, 2017 Written by // CATIE - HIV and Hep C Info Resource Categories // Social Media, As Prevention , CATIE, General Health, Treatment Guidelines -including when to start, Mental Health, Newly Diagnosed, CATIE - HIV and Hep C Info Resource, Sexual Health, Health, Treatment, Living with HIV

CATIE's must-read information for the newly diagnosed.

If you just found out you are HIV-positive...

Finding out you have HIV may be a shock. You do not have to go through this alone: There is help. With ongoing treatment, care and support, HIV can be managed. You can live long and well with HIV. You’ve already taken the first step by getting tested. Now it is important to get care and treatment as soon as you can. 1. HIV can be treated. Talk to the person who gave you your test result about finding a doctor who treats people with HIV. If they cannot give you the name and number of an HI

Like the Mark of Cain, we carry stigma with us.

published: March, 01, 2017 Written by // Michael Yoder Categories // Social Media, African, Caribbean and Black, Gay Men, Youth, Mental Health, Newly Diagnosed, Women, Living with HIV, Opinion Pieces, Michael Yoder

Michael Yoder: "... I wonder if, in some ways, we perpetuate stigma by trying to diminish it."

Like the Mark of Cain, we carry stigma with us.

"Then the Lord put a mark on Cain so that no one who found him would kill him" Genesis 4:15-16 I see a lot of campaigns about reducing stigma and each time I see a new one there's a little knot in my stomach that makes me uncomfortable. While I strongly believe that we need to reduce HIV stigma and discrimination, I wonder if, in some ways, we perpetuate stigma by trying to diminish it. Here some people's heads will be exploding, but nonetheless, every time we talk about how we're stigmatiz

Three reasons why CATIE supports U=U for sexual transmission

published: January, 25, 2017 Categories // African, Caribbean and Black, Activism, Social Media, Gay Men, As Prevention , CATIE, Current Affairs, Youth, Mental Health, Newly Diagnosed, Treatment Guidelines -including when to start, Women, CATIE - HIV and Hep C Info Resource, Health, International , Treatment

From CATIE, Camille Arkell with three reasons why this revolutionary message is so important

Three reasons why CATIE supports U=U for sexual transmission

This article by Camille Arkell previously apperared at CATIE blog, here. Une version française est disponible ici. CATIE recently endorsed the Consensus Statement of the Prevention Access Campaign, celebrating the fact that “undetectable equals untransmittable.” This revolutionary statement, pushed forward by a dedicated group of people living with HIV, has prompted CATIE to reflect on our sexual HIV prevention messaging. The research on treatment as prevention has been slowly ac

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