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Articles tagged with: Mark S_ King My Fabulous Disease

Dec19

The Night Don Lemon Hugged Me

Wednesday, 19 December 2012 Written by // Mark S. King - My Fabulous Disease Categories // Arts and Entertainment, Television, Living with HIV, Mark S. King

Mark S. King in the spotlight: a painful past, a CNN anchor - and the grace of a second chance

The Night Don Lemon Hugged Me

Our first meeting on-camera was six years ago. The memory of it pains me still, despite my enthusiasm for appearing on national television for any reason whatsoever. 

And how long have you been off drugs?” he asked. The look in his eyes carried a journalist’s skepticism. The intense lights of the CNN studio seemed to brighten at the question.

Six months,” I answered. The idea of appearing at the anchor desk with Don Lemon was losing its allure. Granted, I wanted to help promote the documentary Meth, and discuss gay men, drug abuse, and my own crystal meth addiction. But the interview had become too real, too well lit, and far too direct for me to escape the truth with my usual manipulations.

And where are you living now?” Don asked me. I felt flush, reddened by shame and by the pitiful answer I was now obligated to give.

I live in a halfway house with other men recovering from addiction, Don.”

My mother is watching, I thought. My friends. And people who know me who will be far too polite to ever mention they saw this.

Don Lemon’s news story was insightful and illuminated a very real health threat to gay men. And it featured an actual gay drug addict on camera. A well-spoken one, but an addict just the same.

In the six years since those uncomfortable few minutes, I published a book about living in Los Angeles during the dawn of AIDS. I embraced my HIV status by launching my blog, My Fabulous Disease. And despite relapses and lessons along the way, I have faced my addiction and loosened its grip on my life and productivity.

And so, as fate would have it, I found myself back at Don Lemon’s desk recently, live on the air, to talk about living with HIV and how I was combating stigma with weapons of joy and good humor (pictured above, with video link below).

http://www.cnn.com/video/#/video/health/2012/12/02/lemon-mark-king-intv.cn

I have no explanation why I should be so lucky as to appear twice on CNN, the second serving to wash away the discomfort of the first. There’s no reason except the unimaginable grace that has carried me through the last six years.

Don’s studio is much larger now, and both his command of the newscast and his popularity have grown accordingly. During the few minutes of commercial break before our segment, he welcomed me to the desk like an old friend.

The lighting was just as intense as my first visit, revealing my bright grin, lined with age and survival and experience. I didn’t complain. I even asked if it could be brighter in the studio. “Madonna lighting, please,” I joked to the crew as I took my seat.

There was no mention of crystal meth. No doubting glances or talk of halfway houses. Instead, Don smiled as he introduced me, assuring his viewers this story about AIDS was a little bit different, and then pronounced me “a trip.” I beamed with pride, more grateful to be there, discussing this topic, than anyone watching could ever know.

I wasn’t the only one who had a newfound lightness of being. Since our first meeting, Don had published Transparent, a book about his life and career that included coming out publicly as a gay man. He’s familiar with being an “other,” and with fighting shame in order to reveal who you are. We had both found a path to freedom paved with rigorous honesty.

We talked about HIV stigma and Madonna lighting. He shared a story of seeing an AIDS patient on a New York City street years ago. I interjected my new favorite topic, the injustice of HIV criminalization. We were two very different men comfortable in our own skin, who refused to allow shame a place at the table.

At the end of our interview I began to shake his hand and something remarkable happened. Don stood and reached out for a hug. It was surprising for an anchor, maybe even awkward for a brief second, and then the sweetness of the gesture won out as we embraced.

The humanity – and perhaps even bravery – of his simple act wasn’t lost on viewers, many of whom wrote to tell me how moving it was.

But for me, it was something more. Don Lemon, who remembered our first visit and never mentioned the circumstances, who knew this interview meant growth for me, a sort of redemption perhaps, and who even knew a little about overcoming shame himself, reached out in a gesture of support.

A hug.

This article first appeared on Mark S. King’s own blog My Fabulous Disease here. 

Dec17

The ‘My Fabulous Disease’ Holiday Spectacular!

Saturday, 17 December 2011 Written by // Mark S. King - My Fabulous Disease Categories // Gay Men, Living with HIV, Population Specific , Mark S. King

Mark S. King wanted to call this “A Very Diseased Christmas” . But it’s a lovely post, it really is. The video will move and inspire you. Mark, we love you!

The ‘My Fabulous Disease’ Holiday Spectacular!

My mother’s home here in Shreveport, Louisiana, was fraught with excitement last week. Christmas decorations littered the living room, the almond scent of cookies filled the air, and last minute phone calls and arrangements made it all feel like a major production was underway.

And there was. The event that had everyone scrambling was held on a Sunday afternoon, when siblings and extended family arrived for the taping of The ‘My Fabulous Disease’ Holiday Spectacular.

Now just take that in for a moment. My family was enthusiastically participating in a video about my life with HIV. And they were much more concerned with choosing a fun holiday outfit than being publicly associated with their HIV positive relative. For them, sitting down for an interview about my HIV status, well, that was the easy part. They had no problem being candid about my HIV, as you will see.

I am an extremely blessed and fortunate man.

markxmas2

When I was young, I remember watching “The King Family” on television (right), a big happy bunch that sang really well and wore lots of matching outfits. I was starstruck, and always wondered if that King family might bear some relation to mine. And if they didn’t, would they let me come be on their show anyway?

Well, today, I’m proud of my own family for displaying our dubious talents, and by going a big step further by discussing the importance of supporting those of us living with HIV/AIDS. For far too many, the difficulty in disclosing our status — or the result of doing so — has distanced them from the people they need most during times of challenge.

The Holiday Spectacular includes some family greetings, a cooking segment with Mom (you’ll want that divine almond scent wafting through your home, too), some holiday drag, a surprise here and there, and even an appearance by the big man himself, Santa Claus.

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You may remember my mother from “What it Feels Like for a Mom,” a bracingly honest video created for Mother’s Day. You might also remember my gay brother Dick, who made an It Gets Better video with me. He was also one of the main subjects of the award winning “Once, When We Were Heroes” posting I made for World AIDS Day several years ago. But today, you’re also going to meet sisters, nieces and in-laws who have special holiday greetings just for you.

Enjoy the holiday special, my friends. I hope you’ll share it with anyone that could use some holiday cheer, or needs a reminder that they are loved. And as always, please be well.

Mark

p.s. As promised in the video, here is the recipe for Mom’s Christmas Cookies. I’m certain they’re fantastic for your t-cells.

MOM’S CHRISTMAS TREE COOKIES

(Note: Mother uses a MIRRO Food Press, a device that must have been manufactured during the Eisenhower era, judging from the faded instruction manual she still keeps handy. I found one on E-Bay for you for less than four bucks, or you can use a more modern appliance, if you must. I don’t guarantee the cookies will taste the same!)

Time: 10-12 minutes… Temp: 375F… Yield: 7 dozen

  •  1 cup shortening
  • 3/4 cup sugar
  • 1 egg
  • 1/8 tspn salt
  • 1/4 tspn baking soda
  • 1 tspn almond extract
  • 2 1/4 cups sifted flour
  • Green food coloring

1. Cream shortening, adding sugar gradually

2. Add unbeaten egg, dry ingredients, flavoring, and a few drops of food coloring. Mix well.

3. Fill the cookie press and form cookies on ungreased sheet. Sprinkle with sugar and bake.

4. Frost and sprinkle something fabulous on top of them (this is Mom’s provocative departure from the original recipe. That’s just how she rolls.).

This post first appeared on Mark's fabulous own blog My Fabulous Disease.

Jul14

Should AIDS Activists and Pharma Just Get Along?

Thursday, 14 July 2011 Written by // Mark S. King - My Fabulous Disease Categories // Activism, Opinion Pieces, Mark S. King

Mark S King ana the always complicated realtionship that big pharmaceutical companies have with the HIV community.

Should AIDS Activists and Pharma Just Get Along?

I’m having an identity crisis. Am I an AIDS activist, ready to question authority and demand high standards of service for those living with HIV/AIDS? Or am I a “resource” for the pharmaceutical industry, so that they might craft more effective community programs that will lead AIDS patients to “care.”

And that care, no matter how they frame it or how sunny the smiles of their community liaisons, ideally would lead patients to their HIV drug product line.

In this video episode of My Fabulous Disease, I take you along to a community advisory board meeting (CAB) for HIV drug manufacturer Janssen Therapeutics, formerly known as Tibotec. There was something about the cordial way in which the invited HIV advocates provided helpful feedback to the pharmaceutical executives that felt… a little strange.

Although I have agreed to keep the particulars of the meeting private, I will say that there were no fireworks on display – or any real antagonism to speak of. We advocates (”activists” seems like too strong a word) offered our best advice to Janssen, they appreciated it very much, lunch was served, and everyone left happy.

And I felt as if I had failed somehow. I had allowed the topics to be entirely in the hands of our hosts, and any issues that deserved discussion but were not on our elegantly typed agenda – educating patients about treatment risks, or, God forbid, drug pricing – were never discussed. I didn’t feel like much of an activist. I felt like a focus group member.

xmarkbig2

It’s very possible that my attitude here is outdated. In the early days, we took to the streets because societal apathy and ignorance demanded it. We protested and threw red paint and otherwise shamed the pharmaceuticals into better medications, broader access and more community involvement. Those battles were waged (and largely succeeded) many years ago, while pharma has come through with an astounding arsenal of successful HIV medications. Why does something deep inside me resist civil dialogue that advances our mutual interests? Am I living in the past, being an activist without a cause?

Clearly, we have some common goals, chief among them HIV testing and access to treatment. And pharma has resources that community organizations could only dream of, so advising them on creating the best campaigns possible (to get tested, to “get into care”) makes sense. So why was I so ambivalent?

Activism should make people uncomfortable. Just ask Larry Kramer. I watched the late, great Martin Delaney, founder of Project Inform, demand in similar meetings that more be done in terms of drug efficacy and proper data and experimental drug access. He made me very uncomfortable and I was on his side. Martin usually got what he wanted. And he wanted it for you and me.

At least, through this video, I get an opportunity to discuss some pressing concerns not covered in the community meeting. I question some basic assumptions, such as whether our hard work on the ADAP crisis is pulling attention and resources from the “big picture” of pharma drug pricing and generics, and I offer an indictment of our U.S. health care system for good measure.

There are still confrontations to have and tough arguments to make, and the agendas of advocates and pharma alike should always be questioned.

It just might be a little uncomfortable.

Mark

(”Enjoy AZT” image credit: ACT UP New York)

Excepted from trhe latest entry in Mark S. King' fabulous own blog My Fabulous Disease

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